Department of Community Health Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Vali Asr Ave., Ayatollah Hashemi Rafsanjani Cross Road, Tehran, Iran.
School of Nursing & Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
World J Pediatr. 2022 Dec;18(12):791-803. doi: 10.1007/s12519-022-00600-x. Epub 2022 Sep 13.
Providing access to pediatric palliative care (PPC) for children living with a serious illness, such as cancer, is of critical importance, although this specialized intervention, as a novel concept, still seems vague and complicated. The present study analyzed the concept of PPC for children with cancer.
Rodgers' evolutionary method was employed for the concept analysis. Articles on PPC, particularly those for children suffering from cancer, published between 2010 and 2021 were searched in valid academic research databases. The inclusion criteria for the full-text articles were based on the characteristics, antecedents, and consequences of PPC for children with cancer.
In total, 19 relevant articles were selected and then reviewed and analyzed after applying the inclusion criteria and the final sampling. The analysis of the concept of PPC for children affected with cancer revealed four characteristics, including "PPC as holistic and integrated care", "PPC as patient- and family-centered care", "PPC as early-start continuous care", and "PPC as interdisciplinary and team-based care". Some effective factors could also act as antecedents for this concept, i.e., health care providers' training and expertise as well as human resources and financing. Moreover, improved quality of life, symptom reduction, and coordination between patient care and family support were among the PPC consequences for such children.
The study results demonstrated that delivering PPC to children with cancer demanded a comprehensive view of its various dimensions. Furthermore, numerous factors need to be delineated for its accurate and complete implementation.
为患有癌症等严重疾病的儿童提供儿科姑息治疗(PPC)至关重要,尽管这种特殊干预作为一个新概念似乎仍然模糊和复杂。本研究分析了癌症儿童 PPC 的概念。
采用罗杰斯的进化方法进行概念分析。在有效的学术研究数据库中搜索了 2010 年至 2021 年间发表的关于 PPC 的文章,特别是针对患有癌症的儿童的文章。全文文章的纳入标准基于癌症儿童 PPC 的特征、前因和后果。
共选择了 19 篇相关文章,然后在应用纳入标准和最终抽样后进行了审查和分析。对癌症儿童 PPC 概念的分析揭示了四个特征,包括“PPC 作为整体和综合护理”、“PPC 作为以患者和家庭为中心的护理”、“PPC 作为早期开始的连续护理”和“PPC 作为跨学科和团队为基础的护理”。一些有效因素也可以作为该概念的前因,即医疗保健提供者的培训和专业知识以及人力资源和资金。此外,提高生活质量、减轻症状以及协调患者护理和家庭支持是此类儿童 PPC 的后果之一。
研究结果表明,为癌症儿童提供 PPC 需要全面了解其各个方面。此外,还需要明确许多因素,以便准确和完整地实施。