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医院、临终关怀机构或家庭:儿科姑息治疗中地点重要性的范围综述。

Hospital, hospice, or home: A scoping review of the importance of place in pediatric palliative care.

机构信息

Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.

Department of Geography & Planning, University of Toronto, Toronto, Canada.

出版信息

Palliat Support Care. 2023 Oct;21(5):925-934. doi: 10.1017/S1478951523000664.

DOI:10.1017/S1478951523000664
PMID:37357946
Abstract

BACKGROUND

Palliative care necessitates questions about the preferred place for delivering care and location of death. Place is integral to palliative care, as it can impact proximity to family, available resources/support, and patient comfort. Despite the importance of place, there is remarkably little literature exploring its role in pediatric palliative care (PPC).

OBJECTIVES

To understand the importance and meaning of place in PPC.

METHODS

We conducted a scoping review to understand the importance of place in PPC. Five databases were searched using keywords related to "pediatric," "palliative," and "place." Two reviewers screened results, extracted data, and analyzed emergent themes pertaining to place.

RESULTS

From 3076 search results, we identified and reviewed 25 articles. The literature highlights hospital, home, and hospice as 3 distinct PPC places. Children and their families have place preferences for PPC and place of death, and a growing number prefer death to occur at home. Results also indicate numerous factors influence place preferences (e.g., comfort, grief, cultural/spiritual practices, and socioeconomic status).

SIGNIFICANCE OF RESULTS

Place influences families' PPC decisions and experiences and thus warrants further study. Greater understanding of the importance and roles of place in PPC could enhance PPC policy and practice, as well as PPC environments.

摘要

背景

姑息治疗需要考虑提供护理的首选地点和死亡地点。地点是姑息治疗的一个重要组成部分,因为它会影响到与家人的亲近程度、可用资源/支持以及患者的舒适度。尽管地点很重要,但在儿科姑息治疗(PPC)中,几乎没有关于其作用的文献。

目的

了解地点在 PPC 中的重要性和意义。

方法

我们进行了范围综述,以了解地点在 PPC 中的重要性。使用与“儿科”、“姑息治疗”和“地点”相关的关键词,在五个数据库中进行了搜索。两名评审员筛选结果、提取数据并分析与地点相关的主题。

结果

从 3076 个搜索结果中,我们确定并回顾了 25 篇文章。文献强调了医院、家庭和临终关怀是 3 种不同的 PPC 地点。儿童及其家属对 PPC 和死亡地点有偏好,越来越多的人希望在家中去世。结果还表明,许多因素会影响地点偏好(例如,舒适度、悲伤、文化/精神实践和社会经济地位)。

意义

地点影响着家庭的 PPC 决策和体验,因此值得进一步研究。更深入地了解地点在 PPC 中的重要性和作用,可以增强 PPC 政策和实践以及 PPC 环境。

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