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儿童复杂先天性心脏病患儿入住儿科重症监护病房后家长的心理需求:一项问卷调查研究。

Psychological needs of parents of children with complicated congenital heart disease after admitting to pediatric intensive care unit: A questionnaire study.

作者信息

Zhu Ji-Hua, Jin Chen-Di, Tang Xiao-Min

机构信息

Department of Nursing, The Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou 310053, Zhejiang Province, China.

出版信息

World J Clin Cases. 2022 Aug 26;10(24):8578-8586. doi: 10.12998/wjcc.v10.i24.8578.

Abstract

BACKGROUND

Parents of children with complicated congenital heart disease (CHD) have different needs after surgery. Little literature reports the impact factors for psychological needs of parents of children with complicated CHD.

AIM

To investigate the status quo of the needs of parents of children after surgery for complex CHD, and analyze the influencing factors, in order to provide a theoretical basis for formulating corresponding nursing countermeasures.

METHODS

A modified Chinese version of the Critical Care Family Needs Inventory (M-CCFNI) was used to select 200 parents of children with complex CHD after surgery within 72 h after admission to the intensive care unit in our hospital to conduct an online questionnaire survey. The aim was to understand the needs of parents in relation to the following five aspects: The support from medical staff, comfort of the parents themselves, the acquisition of information, their closeness to the children, and assurance of the child's condition.

RESULTS

Parents of children with complex CHD had a higher degree of demand, especially in terms of condition assurance, acquisition of information, and closeness to the children. The age, education level, and residence of the parents were related to the five dimensions of the needs of parents of children with complex CHD who had undergone surgery.

CONCLUSION

In practice, nurses should formulate corresponding nursing strategies based on the different cultural and social backgrounds of parents of children after complex CHD surgery to meet their different needs, and improve satisfaction. These findings provide a theoretical basis for constructing a family participatory nursing model for children in the intensive care unit in the future.

摘要

背景

患有复杂先天性心脏病(CHD)患儿的家长在孩子术后有不同的需求。鲜有文献报道复杂CHD患儿家长心理需求的影响因素。

目的

调查复杂CHD患儿术后家长的需求现状,并分析影响因素,为制定相应的护理对策提供理论依据。

方法

采用中文版重症监护家庭需求量表修订版(M-CCFNI),选取我院重症监护病房入院72小时内的200名复杂CHD患儿术后家长进行在线问卷调查。目的是了解家长在以下五个方面的需求:医护人员的支持、家长自身的舒适度、信息获取、与孩子的亲近程度以及孩子病情的保障。

结果

复杂CHD患儿家长的需求程度较高,尤其是在病情保障、信息获取和与孩子亲近程度方面。家长的年龄、文化程度和居住地与复杂CHD术后患儿家长需求的五个维度相关。

结论

在实际工作中,护士应根据复杂CHD术后患儿家长不同的文化和社会背景制定相应的护理策略,以满足其不同需求,提高满意度。这些研究结果为今后构建重症监护病房患儿家庭参与式护理模式提供了理论依据。

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本文引用的文献

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Parent Perspectives on Family-Based Psychosocial Interventions for Congenital Heart Disease.
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Congenit Heart Dis. 2018 Jul;13(4):554-562. doi: 10.1111/chd.12605. Epub 2018 Apr 6.
9

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