Department of General Internal and Psychosomatic Medicine, University Clinic Heidelberg, Im Neuenheimer Feld 410, 69120, Heidelberg, Germany.
National Center for Tumor Diseases Heidelberg, University Clinic Heidelberg, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.
Sci Rep. 2022 Oct 6;12(1):16713. doi: 10.1038/s41598-022-21157-9.
Despite high levels of distress, family caregivers of patients with cancer rarely seek psychosocial support and Internet-based interventions (IBIs) are a promising approach to reduce some access barriers. Therefore, we developed a self-guided IBI for family caregivers of patients with cancer (OAse), which, in addition to patients' spouses, also addresses other family members (e.g., adult children, parents). This study aimed to determine the feasibility of OAse (recruitment, dropout, adherence, participant satisfaction). Secondary outcomes were caregivers' self-efficacy, emotional state, and supportive care needs. N = 41 family caregivers participated in the study (female: 65%), mostly spouses (71%), followed by children (20%), parents (7%), and friends (2%). Recruitment (47%), retention (68%), and adherence rates (76% completed at least 4 of 6 lessons) support the feasibility of OAse. Overall, the results showed a high degree of overall participant satisfaction (96%). There were no significant pre-post differences in secondary outcome criteria, but a trend toward improvement in managing difficult interactions/emotions (p = .06) and depression/anxiety (p = .06). Although the efficacy of the intervention remains to be investigated, our results suggest that OAse can be well implemented in caregivers' daily lives and has the potential to improve family caregivers' coping strategies.
尽管患者的家属照顾者存在高度的困扰,但他们很少寻求心理社会支持,而基于互联网的干预(IBIs)是减少一些获取障碍的有前途的方法。因此,我们为癌症患者的家属照顾者开发了一种自我指导的 IBI(OAse),它除了患者的配偶外,还针对其他家庭成员(例如成年子女、父母)。本研究旨在确定 OAse 的可行性(招募、流失、依从性、参与者满意度)。次要结果是照顾者的自我效能感、情绪状态和支持性护理需求。41 名家庭照顾者参加了研究(女性:65%),大多数是配偶(71%),其次是子女(20%)、父母(7%)和朋友(2%)。招募(47%)、保留(68%)和依从率(76%的参与者至少完成了 6 节课中的 4 节)支持 OAse 的可行性。总体而言,结果显示出高度的整体参与者满意度(96%)。次要结果标准没有显著的前后差异,但在管理困难互动/情绪(p=0.06)和抑郁/焦虑(p=0.06)方面有改善的趋势。尽管干预的疗效仍有待研究,但我们的结果表明,OAse 可以很好地融入照顾者的日常生活中,并有可能改善家庭照顾者的应对策略。