iHuman Institute, University of Sheffield, Sheffield, UK.
Department of Sociological Studies, University of Sheffield, Sheffield, UK.
Sociol Health Illn. 2022 Dec;44 Suppl 1(Suppl 1):158-178. doi: 10.1111/1467-9566.13536. Epub 2022 Oct 10.
The pharmaceutical industry plays a central role in the production of the drugs we use to treat most illnesses. It is immensely powerful and has received sustained attention from sociologists of health and illness, who have provided a critique of its influence and sometimes unethical behaviour. However, in recent years, funders are increasingly expecting researchers to engage and collaborate with stakeholders, including industry. This raises important questions about the institutionalisation of complicity and the different forms this might take. This article asks: How can sociologists engage with the pharmaceutical industry in a positive and constructive manner, whilst remaining independent, principled and critical? It will draw on my experience of establishing a major project on high-priced drugs for rare diseases and the literature on collaboration, stakeholder engagement and responsible research to propose a methodological framework to address this challenge. This is based on six PRIMES: (normative) Principles, Reflection and Independence, (field) Mapping, (careful) Engagement and Strategic intervention that have broad applications to many other areas of contemporary social science research.
制药业在生产我们用于治疗大多数疾病的药物方面发挥着核心作用。它非常强大，一直受到健康和疾病社会学家的关注，这些社会学家对其影响力进行了批判，有时还对其不道德行为进行了批判。然而，近年来，资助者越来越期望研究人员与利益相关者（包括行业）进行接触和合作。这就提出了关于共谋制度化以及这种共谋可能采取的不同形式的重要问题。本文提出了这样一个问题：社会学家如何以积极和建设性的方式与制药业接触，同时保持独立、有原则和批判性？本文将借鉴我在罕见病高价药物方面开展重大项目的经验以及关于合作、利益相关者参与和负责任研究的文献，提出一个方法框架来应对这一挑战。这是基于六个 PRIMES（规范性）原则、反思和独立性、（实地）映射、（谨慎）参与和战略干预，这些原则和干预广泛适用于当代社会科学研究的许多其他领域。
