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本文引用的文献

1
Towards a feminist philosophy of engagements in health-related research.迈向健康相关研究中的女性主义参与哲学。
Wellcome Open Res. 2022 Feb 10;6:58. doi: 10.12688/wellcomeopenres.16535.2. eCollection 2021.
2
Power, Privilege and Knowledge: the Untenable Promise of Co-production in Mental "Health".权力、特权与知识:精神“健康”领域共同生产难以维系的承诺
Front Sociol. 2019 Jul 16;4:57. doi: 10.3389/fsoc.2019.00057. eCollection 2019.
3
PPI Or User Involvement: Taking stock from a service user perspective in the twenty first century.患者参与度或用户参与:从21世纪服务用户的角度进行评估。
Res Involv Engagem. 2020 Jun 26;6:36. doi: 10.1186/s40900-020-00211-8. eCollection 2020.
4
The dark side of coproduction: do the costs outweigh the benefits for health research?共同生产的阴暗面:对于健康研究来说,其成本是否超过了收益?
Health Res Policy Syst. 2019 Mar 28;17(1):33. doi: 10.1186/s12961-019-0432-3.
5
'Outside the Original Remit': Co-production in UK mental health research, lessons from the field.《超出原始范围》:英国精神健康研究中的共同制作,来自实地的经验教训。
Int J Ment Health Nurs. 2018 Aug;27(4):1273-1281. doi: 10.1111/inm.12499. Epub 2018 Jun 19.
6
Healthy publics: enabling cultures and environments for health.健康公众:营造促进健康的文化与环境。
Palgrave Commun. 2018 May 15;4:57. doi: 10.1057/s41599-018-0113-9.
7
'You're there because you are unprofessional': patient and public involvement as liminal knowledge spaces.“你之所以在那里是因为你不专业”:患者及公众参与作为阈限知识空间
Sociol Health Illn. 2018 Mar;40(3):463-477. doi: 10.1111/1467-9566.12655. Epub 2017 Dec 27.
8
"How can anybody be representative for those kind of people?" Forms of patient representation in health research, and why it is always contestable.在健康研究中,如何让任何人能够代表那类人群?患者代表性的形式,以及为什么这始终是有争议的。
Soc Sci Med. 2017 Jun;183:62-69. doi: 10.1016/j.socscimed.2017.04.049. Epub 2017 Apr 27.
9
Patient and public involvement in health research: ethical imperative and/or radical challenge?患者和公众参与健康研究:道德的必然要求还是激进的挑战?
J Health Psychol. 2014 Jan;19(1):149-58. doi: 10.1177/1359105313500249. Epub 2013 Sep 20.
10
On sitting and doing: ethnography as action in global health.静与动:全球健康中的民族志行动
Soc Sci Med. 2013 Dec;99:127-34. doi: 10.1016/j.socscimed.2013.07.018. Epub 2013 Jul 31.

参与式研究的不可能性:研究者、“公众”与机构之间的同谋关系与责任

The impossibility of engaged research: Complicity and accountability between researchers, 'publics' and institutions.

作者信息

Heney Veronica, Poleykett Branwyn

机构信息

Wellcome Centre for Cultures and Environments of Health, University of Exeter, Exeter, UK.

Faculty of Social & Behavioural Sciences, University of Amsterdam, Amsterdam, The Netherlands.

出版信息

Sociol Health Illn. 2022 Dec;44 Suppl 1(Suppl 1):179-194. doi: 10.1111/1467-9566.13418. Epub 2021 Dec 7.

DOI:10.1111/1467-9566.13418
PMID:34874575
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7617641/
Abstract

Over the past decade, U.K. universities have increasingly sought to involve publics in research as active participants in the construction of academic knowledge. Sociologists of health have largely welcomed this enthusiasm for engaged and participatory ways of working, including methodologies long in use in the field such as patient-led research and co-creation. Despite the strong interest in engaged research, however, we argue that funding patterns, bureaucratic structures and an overreliance on people employed on casual contracts make it extremely difficult, often impossible, to do engaged research in British universities. Drawing on our own experiences, we show how our attempts to practise and deepen accountability to variously situated publics were constrained by the way our institution imagined and materially supported engagement. We argue that it falls to individual researchers to mitigate or work around structural barriers to engagement, and that this process creates dilemmas of complicity. If engaged research is to fulfil its remit for inclusion and its radical potential, researchers need to think carefully about how the U.K. engagement agenda entwines with processes of casualisation, acceleration and projectification, and how institutional recuperations of engagement can undermine its political and epistemic objectives.

摘要

在过去十年中,英国大学越来越多地寻求让公众作为学术知识构建的积极参与者参与研究。健康领域的社会学家在很大程度上欢迎这种对参与式工作方式的热情,包括该领域长期使用的方法,如患者主导的研究和共同创造。然而,尽管对参与式研究有着浓厚兴趣,但我们认为,资金模式、官僚结构以及对临时合同工的过度依赖,使得在英国大学开展参与式研究极其困难,甚至常常是不可能的。借鉴我们自己的经验,我们展示了我们试图实践并深化对不同处境公众的问责是如何受到我们所在机构对参与的设想以及物质支持方式的限制。我们认为,减轻或克服参与的结构性障碍的责任落在了个别研究人员身上,而这一过程会产生同谋困境。如果参与式研究要实现其包容的使命及其激进潜力,研究人员需要仔细思考英国的参与议程如何与临时工化、加速和项目化进程交织在一起,以及机构对参与的回收利用如何可能破坏其政治和认知目标。