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炎症性肠病患者对饮食建议和饮食调整的需求感知。

Perception of the need for dietary advice and dietary modifications in inflammatory bowel disease patients.

机构信息

Servicio de Patología Digestiva, Hospital Santa Creu i Sant Pau, Barcelona, España.

Servicio de Patología Digestiva, Hospital Santa Creu i Sant Pau, Barcelona, España.

出版信息

Gastroenterol Hepatol. 2023 May;46(5):329-335. doi: 10.1016/j.gastrohep.2022.10.005. Epub 2022 Oct 13.

Abstract

BACKGROUND AND AIM

In inflammatory bowel disease (IBD), diet can be perceived as a trigger for relapses or clinical worsening, dietary modifications are frequent and not derived from professional advice. The aim of this study was to evaluate the perception of the need for dietary advice in patients with IBD, to know the dietary modifications adopted and, it's effect on IBD.

METHODS

An anonymous structured questionnaire with a visual analog scale (0-10) was distributed to consecutive outpatients from our IBD unit.

RESULTS

A total of 124 complete the questionnaire (54% ulcerative colitis, 46% Crohn's disease). Mean age was 47±12 years. Dietary advice provided in the clinic was assessed with a median score of 7 (IIC, 4.50-9.00). 40% sought external dietary advice, often during the first year after diagnosis (70%). The most frequent dietary recommendations from an external professional were: dairy free diet (29%), low fat (27%), gluten free (23%), and low fiber (21%). Dietary advice from external source was assessed with a median score of 7.50 (IIC, 5.50-9.50), improving digestive symptoms in 73% of cases. Regarding dietary modifications, 61% excluded some foods (57% permanently) and 11% fasted on their own decision.

CONCLUSIONS

IBD patient show a clear need for dietary advice, especially at the time of IBD diagnosis. Early specific and in-depth dietary information would increase patient satisfaction and could prevent the adoption of unjustified exclusion diets.

摘要

背景与目的

在炎症性肠病(IBD)中,饮食可能被视为复发或临床恶化的诱因,因此患者经常进行饮食调整,但这些调整并非源于专业建议。本研究旨在评估 IBD 患者对饮食建议的需求感知,了解他们所采用的饮食调整措施及其对 IBD 的影响。

方法

我们向我院 IBD 门诊的连续就诊患者发放了一份匿名结构化问卷,并采用视觉模拟评分(0-10 分)进行评估。

结果

共有 124 名患者完成了问卷(54%溃疡性结肠炎,46%克罗恩病),平均年龄为 47±12 岁。诊所提供的饮食建议评估中位数得分为 7 分(IIC,4.50-9.00)。40%的患者寻求外部饮食建议,其中大多数是在诊断后的第一年(70%)。外部专业人士最常建议的饮食方案是:无乳制品饮食(29%)、低脂肪饮食(27%)、无麸质饮食(23%)和低纤维饮食(21%)。来自外部来源的饮食建议评估中位数得分为 7.50 分(IIC,5.50-9.50),73%的患者反馈改善了消化症状。关于饮食调整,61%的患者会排除某些食物(57%为永久性),11%会自行禁食。

结论

IBD 患者对饮食建议有明确的需求,特别是在 IBD 诊断时。早期提供具体和深入的饮食信息将提高患者满意度,并可防止不合理的饮食限制。

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