Department of Neurosurgery, Memorial Sloan Kettering Cancer Center, 1275 York Avenue, New York, NY 10065, USA; Pituitary and Skull Base Tumor Program, Memorial Sloan Kettering Cancer Center, 1275 York Avenue, New York, NY 10065, USA.
Pituitary and Skull Base Tumor Program, Memorial Sloan Kettering Cancer Center, 1275 York Avenue, New York, NY 10065, USA; Department of Surgery, Head and Neck Service, Memorial Sloan Kettering Cancer Center, 1275 York Avenue, New York, NY 10065, USA.
Endocrinol Metab Clin North Am. 2022 Dec;51(4):727-739. doi: 10.1016/j.ecl.2022.04.005. Epub 2022 Sep 24.
The functional outcome, quality of life, and patient feedback related to a chosen treatment approach in skull base surgery have become a subject of interest and focused research in recent years. The current advances in endoscopic optical imaging technology and surgical precision have radically lowered the perioperative morbidity associated with skull base surgery. This has pushed toward a higher focus on patient-reported outcomes (PROs). It is now critical to ensure that the offered treatment plan and approach align with the patient's preferences and expectations, in addition to the surgeon's best clinical judgment and experience. PROs represent a view that reflects the patient's own thoughts and perspective on their condition and the management options, without input or interpretations from the surgeon. Having PRO data enables patients the opportunity to learn from the experiences and perspectives of other patients. This input empowers the patient to become an active participant in the decision-making process at different stages of their care. An in-depth PRO evaluation requires specific validated tools and scoring systems, namely the patient-reported outcomes measures (PROM) tools. In this review, we discuss the currently available skull-base-related PROs, the assessment tools used to capture them, and the future trends of this important topic that is in its infancy.
近年来,与颅底外科治疗方法相关的功能结果、生活质量和患者反馈已成为关注和研究的焦点。目前,内镜光学成像技术和手术精度的进步极大地降低了颅底手术相关的围手术期发病率。这促使人们更加关注患者报告的结果(PROs)。现在至关重要的是,除了外科医生的最佳临床判断和经验外,所提供的治疗计划和方法还必须符合患者的偏好和期望。PROs 代表了一种观点,反映了患者对自身状况和管理选择的看法,而无需外科医生的任何意见或解释。PRO 数据使患者有机会从其他患者的经验和观点中学习。这种投入使患者能够在其治疗的不同阶段积极参与决策过程。深入的 PRO 评估需要特定的经过验证的工具和评分系统,即患者报告的结果衡量工具(PROM 工具)。在这篇综述中,我们讨论了目前可用的与颅底相关的 PROs、用于捕获它们的评估工具,以及这个仍处于起步阶段的重要主题的未来趋势。