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体育活动计划对学龄期囊性纤维化儿童生活质量的影响:一项随机临床试验。

Effect of Physical Activity Program on the Quality of Life of Children with Cystic Fibrosis at School Age: A Randomized Clinical Trail.

作者信息

Hakim Ashrafalsadat, Tabatabaei Seyedeh Kowsar, Mirkarimi Seyed Mohammad Reza, Haghighizadeh Mohammad Hossein

机构信息

Nursing Care Research Center in Chronic Diseases, Department of Nursing, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran.

School of Nursing and Midwifery, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran.

出版信息

Tanaffos. 2022 Jan;21(1):63-69.

Abstract

BACKGROUND

Cystic fibrosis (CF) is a hereditary disease with a high mortality rate. The present study aimed to determine the effect of a physical activity program (PAP) on the life quality of children with CF at school age.

MATERIALS AND METHODS

This study conducted on 70 children with CF, the samples were randomly divided into intervention and control groups. A demographic information questionnaire and the Pediatric Quality of Life Inventory were used for data collection. This study was conducted in three stages and 2 months after the last intervention. Finally, the data were analyzed in SPSS software version 22 using the Chi-square test, independent t-test, and paired t-test at a p-value of less than 0.05.

RESULTS

The results indicated that the two groups had no significant difference in terms of demographic variables before the intervention. Moreover, it was observed that the mean scores of life quality in the physical, emotional, social, and academic performance of children in both groups before the intervention in child and parent evaluations did not show significant differences. After the intervention in the experimental group, the mean scores of life quality in all aspects significantly increased, compared to those of the control group (P<0.001). Moreover, there were no significant differences between the mean scores of life quality in the control group before and after the intervention.

CONCLUSION

Given the effectiveness of the intervention to enhance life quality, PAP is feasible and possible in the field of CF. It has to be noted that this method is an effective way to improve life quality.

摘要

背景

囊性纤维化(CF)是一种死亡率很高的遗传性疾病。本研究旨在确定体育活动计划(PAP)对学龄期CF患儿生活质量的影响。

材料与方法

本研究对70例CF患儿进行,样本随机分为干预组和对照组。使用人口统计学信息问卷和儿童生活质量量表进行数据收集。本研究分三个阶段进行,在最后一次干预后2个月进行。最后,使用SPSS 22软件,采用卡方检验、独立样本t检验和配对样本t检验对数据进行分析,p值小于0.05。

结果

结果表明,干预前两组在人口统计学变量方面无显著差异。此外,观察到在干预前儿童和家长评估中,两组儿童在身体、情感、社会和学业表现方面的生活质量平均得分没有显著差异。干预后,实验组的生活质量各方面平均得分均显著提高,与对照组相比(P<0.001)。此外,对照组干预前后生活质量平均得分无显著差异。

结论

鉴于干预对提高生活质量的有效性,PAP在CF领域是可行且可能的。必须指出,这种方法是提高生活质量的有效途径。

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本文引用的文献

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Physical Activity Counseling for Children With Cystic Fibrosis.针对囊性纤维化患儿的体育活动咨询
Respir Care. 2017 Nov;62(11):1466-1473. doi: 10.4187/respcare.05009. Epub 2017 Aug 22.
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Nutrition and Growth in Cystic Fibrosis.囊性纤维化中的营养与生长
Pediatr Clin North Am. 2016 Aug;63(4):661-78. doi: 10.1016/j.pcl.2016.04.005.
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Exercise and physical activity in children with cystic fibrosis.囊性纤维化患儿的运动与体育活动
Paediatr Respir Rev. 2009 Sep;10(3):105-9. doi: 10.1016/j.prrv.2009.04.001. Epub 2009 Jul 21.

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