Department of Pediatrics, University of Michigan, Ann Arbor, Michigan, United States.
Department of Pediatrics, Oregon Health Sciences University, Portland, Oregon, United States.
Appl Clin Inform. 2022 Oct;13(5):1194-1206. doi: 10.1055/a-1967-8721. Epub 2022 Oct 25.
We previously developed a mobile health (mHealth) app (Roadmap) to promote the resilience of family caregivers during the acute phases of care in patients undergoing hematopoietic cell transplantation (HCT).
This study explored users' perspectives on the uptake of Roadmap's multicomponent features and the app's utility in promoting resilience.
Fifteen participants were randomized to the full version of the app that included resilience-building activities and the other 15 were randomized to the control version that included a limited view of the app (i.e., without any resilience-building activities). They were instructed to use the app for 120 days. Semistructured qualitative interviews were then conducted with users as part of an ongoing, larger Roadmap study (NCT04094844). During the interview, caregiver participants were asked about their overall experiences with the app, frequency of use, features used, facilitators of and barriers to use, and their perspectives on its utility in promoting resilience. Data were professionally transcribed, coded, and categorized through content analysis.
Interviews were conducted with 30 participants, which included 23 females and 7 males. The median age of the population was 58 years (range, 23-82). The four main themes that emerged included app use, ease of use, user experiences, and ability to foster resilience. The subthemes identified related to facilitators (convenience and not harmful), barriers (caregiver burden and being too overwhelmed during the acute phases of HCT care), resilience (optimism/positivity and self-care), and app design improvements (personalization and notifications/reminders).
The qualitative evaluation provided insights into which components were utilized and how one, or a combination of the multicomponent features, may be enhancing users' experiences. Lessons learned suggest that the Roadmap app contributed to promoting resilience during the acute phases of HCT care. Nonetheless, features that provided enhanced personalization may further improve longer-term engagement.
我们之前开发了一款移动健康（mHealth）应用程序（Roadmap），旨在促进造血细胞移植（HCT）患者接受治疗期间，家庭护理人员在急性阶段的适应力。
本研究探讨了用户对 Roadmap 多组分功能的接受程度以及该应用程序在促进适应力方面的实用性。
15 名参与者被随机分配到应用程序的完整版本，其中包括建立适应力的活动，而另外 15 名参与者被随机分配到控制版本，其中包括应用程序的有限视图（即，不包括任何建立适应力的活动）。他们被指示使用该应用程序 120 天。然后，作为正在进行的更大规模 Roadmap 研究的一部分（NCT04094844），对用户进行了半结构化定性访谈。在访谈中，护理人员参与者被问到他们对应用程序的整体体验、使用频率、使用的功能、使用的促进因素和障碍，以及他们对促进适应力的实用性的看法。数据通过内容分析进行专业转录、编码和分类。
对 30 名参与者进行了访谈，其中包括 23 名女性和 7 名男性。人群的中位年龄为 58 岁（范围，23-82 岁）。出现的四个主要主题包括应用程序使用、易用性、用户体验和促进适应力的能力。确定的子主题涉及促进因素（方便且无害）、障碍（护理人员负担过重和在 HCT 治疗的急性阶段负担过重）、适应力（乐观/积极性和自我护理）和应用程序设计改进（个性化和通知/提醒）。
定性评估提供了有关使用哪些组件以及一个或多个多组分功能如何增强用户体验的见解。经验教训表明，Roadmap 应用程序有助于在 HCT 治疗的急性阶段促进适应力。不过，提供增强个性化的功能可能会进一步提高长期参与度。
