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技术能否提高服务不足的儿童和家庭参与康复研究的程度?

Can Technology Improve Participation From Underserved Children and Families in Rehabilitation Research?

机构信息

Department of Occupational Therapy, Marquette University, Milwaukee, Wisconsin,

Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin.

出版信息

WMJ. 2022 Oct;121(3):174-176.

PMID:36301641
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10760929/
Abstract

The COVID-19 pandemic led to the suspension of research studies, exposing many of the limitations of in-person research conducted within a laboratory or clinical setting. However, these limitations existed long before the pandemic and have contributed to small and unrepresentative samples. The pandemic has provided an opportunity to re-evaluate the focus of pediatric rehabilitation research, utilizing existing technology for remote and offsite research that does not require in-person visits. The goals of this shift are to enhance engagement and participation in research and to better meet the needs of participants and their families. We describe how this shift could be applied to assessing children’s motor development outside the laboratory with everyday technology as a model for future research and clinical study. Adapting research protocols will serve a larger and more representative population of children and address inequities in research participation.

摘要

COVID-19 大流行导致研究暂停,暴露出许多在实验室或临床环境中进行的面对面研究的局限性。然而,这些局限性在大流行之前就已经存在,并导致了样本数量小且无代表性。大流行提供了一个重新评估儿科康复研究重点的机会,利用现有的远程和异地研究技术,这些技术不需要面对面的访问。这一转变的目标是提高研究的参与度和参与度,并更好地满足参与者及其家属的需求。我们描述了如何将这种转变应用于使用日常技术在实验室外评估儿童的运动发育,以此作为未来研究和临床研究的模式。调整研究方案将服务于更多样化和更具代表性的儿童群体,并解决研究参与方面的不平等问题。

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本文引用的文献

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Disabil Rehabil. 2022 May;44(9):1746-1757. doi: 10.1080/09638288.2021.1903102. Epub 2021 Apr 8.
2
Let's not go back to 'normal'! lessons from COVID-19 for professionals working in childhood disability.让我们不要回归“正常”!新冠疫情给从事儿童残疾工作的专业人员带来的教训。
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BMC Public Health. 2018 Apr 20;18(1):530. doi: 10.1186/s12889-018-5415-8.
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Fundamental movement skills in adolescents: Secular trends from 2003 to 2010 and associations with physical activity and BMI.青少年基本运动技能:2003 年至 2010 年的长期趋势,以及与身体活动和 BMI 的关联。
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Cognitive, motor, behavioural and academic performances of children born preterm: a meta-analysis and systematic review involving 64 061 children.早产儿儿童的认知、运动、行为和学业表现:一项纳入 64061 名儿童的荟萃分析和系统评价。
BJOG. 2018 Jan;125(1):16-25. doi: 10.1111/1471-0528.14832. Epub 2017 Oct 11.
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The Baby Moves prospective cohort study protocol: using a smartphone application with the General Movements Assessment to predict neurodevelopmental outcomes at age 2 years for extremely preterm or extremely low birthweight infants.“婴儿运动”前瞻性队列研究方案:使用一款智能手机应用程序结合通用运动评估来预测极早产儿或极低出生体重儿2岁时的神经发育结局。
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