Coe Dorothy, Bigirumurame Theophile, Burgess Meera, Rouse John, Wroe Caroline
Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle, England, UK.
Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, England, UK.
NIHR Open Res. 2023 Dec 18;3:37. doi: 10.3310/nihropenres.13434.2. eCollection 2023.
There is a known lack of diversity in research participant populations. This impacts on the generalisability of findings and affects clinician prescribing. In the United Kingdom the research community defines those who are underrepresented as under-served. They are commonly those affected by health inequality and disparity. The notion of under-served is complex, with numerous papers identifying multiple factors that contribute to being under-served and in turn suggesting many strategies to improve engagement.
Research professionals in the UK were invited to complete an online survey. The broad aim was to explore their views on under-served groups. The findings were analysed using statistical and qualitative methods to identify enablers and barriers to engaging the under-served. Descriptive statistics were utilised with associations compared univariately by chi-square test and logistic regression for multivariable analysis.
A total of 945 completed responses were received. Those identified as under-served in this study reflected the previous body of works with a broader descriptor of ethnic and cultural minorities and the addition of adolescents and young adults. Language and literacy skills had the most impact on being under-served. Only 13% of respondents said they felt equipped to meet the needs of the under-served. The main strategy to increase diversity was community engagement and movement of research delivery into the community. The barriers were funding and time. Training needs identified were linked to community engagement, cultural competence and consent processes.
The UK findings from research professionals reflected the previous literature. Adolescents and young people were added to those identified as under-served. Enablers included community outreach and improvement to communication. Barriers were time, funding, organisational processes and lack of focus. Issues were identified with translation and interpretation services. Training requirements focus on methodologies and methods to engage and the consent processes of those from under-served groups.
研究参与者群体中存在已知的多样性不足问题。这影响了研究结果的普遍性，并影响临床医生的处方。在英国，研究界将那些代表性不足的人定义为服务不足的人。他们通常是受健康不平等和差异影响的人群。服务不足的概念很复杂，许多论文确定了导致服务不足的多个因素，进而提出了许多提高参与度的策略。
邀请英国的研究专业人员完成一项在线调查。广泛的目标是探讨他们对服务不足群体的看法。使用统计和定性方法对结果进行分析，以确定吸引服务不足群体参与的促进因素和障碍。使用描述性统计，通过卡方检验对关联进行单变量比较，并使用逻辑回归进行多变量分析。
共收到945份完整回复。在本研究中被确定为服务不足的人群反映了先前的研究成果，其中包括对少数族裔和文化群体的更广泛描述，以及青少年和年轻人。语言和读写能力对服务不足的影响最大。只有13%的受访者表示他们觉得有能力满足服务不足群体的需求。增加多样性的主要策略是社区参与以及将研究交付转移到社区。障碍是资金和时间。确定的培训需求与社区参与、文化能力和同意程序有关。
英国研究专业人员的研究结果反映了先前的文献。青少年和年轻人被添加到被确定为服务不足的人群中。促进因素包括社区外展和沟通改善。障碍是时间、资金、组织流程和缺乏重点。翻译和口译服务存在问题。培训要求侧重于吸引服务不足群体参与的方法和手段以及这些群体的同意程序。
