The Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
J Palliat Med. 2023 Apr;26(4):509-516. doi: 10.1089/jpm.2022.0316. Epub 2022 Oct 27.
The evidence base to support palliative care clinical practice is inadequate and opportunities to improve the evidence base remain despite the field's rapid growth. The aim of this study was to examine current National Institutes of Health (NIH) funding of palliative medicine research and trends over time. We sought to identify NIH funding of palliative medicine (2016-2020) in two stages: (1) we searched the NIH grant database, RePORTER, for grants with the keywords, "palliative care," "end-of-life care," "hospice," and "end of life," and (2) identified palliative care researchers likely to have secured NIH funding using three strategies. We abstracted (1) the first and last authors' names from original investigations published in major palliative medicine journals from 2016 to 2018; (2) names from a PubMed-generated list of original articles published in major medicine, nursing, and subspecialty journals using the above keywords; and (3) palliative medicine journal editorial board members and members of key palliative medicine initiatives. We cross-matched the pooled names against NIH grants funded from 2016 to 2021. A crosswalk analysis of the author search and NIH RePORTER search identified 1658 grants. Of those, 541 were categorized as relevant to palliative medicine, which represented 419 unique principal investigators (mean of 1.34 grants per investigator). Compared with 2011-2015, the number of NIH-funded grants increased by 25%, NIH dollars increased by 35%, and the distribution of grant types remained stable. Despite the challenging NIH funding climate, the number of NIH grants and funding to palliative care have increased. Given the increased funding allocation toward Alzheimer's dementia and related dementia research at the congressional level, this increase in funding reflects this funding allocation and does not represent overall growth. Dedicated federal funding for palliative care research remains critical to grow the evidence base for persons living with serious illnesses and their families.
支持姑息治疗临床实践的证据基础不足，尽管该领域发展迅速，但仍有机会改善证据基础。本研究旨在检查目前美国国立卫生研究院（NIH）对姑息医学研究的资助情况以及随时间的变化趋势。我们试图通过两种方式确定 NIH 对姑息医学的资助（2016-2020 年）：（1）我们在 NIH 拨款数据库 RePORTER 中搜索包含关键字“姑息治疗”、“临终关怀”、“临终关怀”和“生命末期”的拨款；（2）使用三种策略确定可能获得 NIH 资助的姑息治疗研究人员。我们从 2016 年至 2018 年发表在主要姑息医学期刊上的原始研究中提取（1）第一和最后作者的姓名；（2）使用上述关键字在主要医学、护理和专科期刊上发表的原始文章的 PubMed 生成列表中的姓名；（3）姑息医学期刊编辑委员会成员和关键姑息医学计划的成员。我们将汇总的姓名与 2016 年至 2021 年期间资助的 NIH 拨款进行交叉匹配。作者搜索和 NIH RePORTER 搜索的交叉分析确定了 1658 项拨款。其中，541 项被归类为与姑息医学相关，代表 419 位独特的主要研究者（每位研究者平均 1.34 项拨款）。与 2011-2015 年相比，NIH 资助的拨款数量增加了 25%，NIH 拨款增加了 35%，拨款类型的分布保持稳定。尽管 NIH 资助环境具有挑战性，但获得 NIH 资助的拨款数量和姑息治疗的资助都有所增加。鉴于国会层面上阿尔茨海默病和相关痴呆症研究的拨款增加，这种资金增加反映了这种资金分配，而不是整体增长。为了增加患有严重疾病的患者及其家属的循证医学基础，为姑息治疗研究提供专门的联邦资金仍然至关重要。
