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实施国家麻风病消除规划在 COVID-19 时代:一项定性研究。

Implementation of National Leprosy Eradication Programme during COVID-19 era: A qualitative research.

机构信息

Department of Community Medicine, Bankura Sammilani Medical College, Bankura, West Bengal, India.

Department of Dermatology, Bankura Sammilani Medical College, Bankura, West Bengal, India.

出版信息

Indian J Dermatol Venereol Leprol. 2023 May-Jun;89(3):393-402. doi: 10.25259/IJDVL_469_2021.

Abstract

Introduction The COVID-19 pandemic imposed new challenge to the implementation of the National Leprosy Eradication Programme. According to national data, after lockdown due to COVID-19, there was a 29% reduction in total leprosy cases reported in the first quarter (April-June) of 2020 in comparison to 2019. Objectives To explore the difficulties faced by different stakeholders of the National Leprosy Eradication Programme like policy makers, doctors, grass root level health workers as well as leprosy patients during COVID-19 pandemic with respect to programme implementation and access to leprosy care. Materials and Methods Qualitative research was undertaken including two focus-group-discussions held among six leprosy patients diagnosed after lockdown and nine ASHA workers as well as six in-depth interviews of doctors, leprologists, and programme managers. Ethics committee approval was sought and informed consent was obtained from all participants. All focus-group-discussions were electronically recorded and the in-depth interviews telephonically recorded, transcribed and translated from Bengali-to-English. Transcripts were separately coded by researchers and thematically analysed with the help of Visual-Anthropac software version 1.0. Results Solitary focus on COVID-19 control, capacity building and information, education and communication, leprosy case search & surveillance, co-infection among health workers, transportation issues were the themes explored from focus-group-discussions of health workers and ASHA workers. Similarly, the present study identified six themes from in-depth interviews of programme manager, leprologists, programme manager as diagnostic difficulty, operational issues, rehabilitation issues, capacity building & information education and communication activities and way forward. Limitations The research reveals the perceptions of rural population of Eastern India with high leprosy prevalence, which might not be applicable for urban areas or low prevalent districts Conclusion The solitary focus of the administration towards COVID and shifting the infrastructure and human resource only towards the management of COVID can lead to resurgence of the leprosy. Having an organised framework of operations, catering to the need of the front-line workers in rendering services, utilizing the digital platform and social media, and focusing on rehabilitation would be needed to overcome the crisis.

摘要

引言

新冠疫情对实施全国麻风病消除规划带来了新的挑战。根据国家数据,自新冠疫情封锁以来,2020 年第一季度(4 月至 6 月)麻风病总病例报告数较 2019 年减少了 29%。

目的

探讨新冠疫情期间,全国麻风病消除规划的不同利益相关者(决策者、医生、基层卫生工作者以及麻风病患者)在规划实施和获得麻风病护理方面面临的困难。

材料与方法

开展了定性研究,包括两次焦点小组讨论,参与者为封锁后确诊的 6 名麻风病患者和 9 名 ASHA 工作人员,以及 6 名医生、麻风病专家和规划管理人员的深度访谈。研究获得了伦理委员会的批准,并获得了所有参与者的知情同意。所有焦点小组讨论均通过电子方式记录,深度访谈通过电话记录,并从孟加拉语翻译成英语。研究人员分别对访谈记录进行编码,并使用 Visual-Anthropac 软件版本 1.0 进行主题分析。

结果

来自卫生工作者和 ASHA 工作人员的焦点小组讨论以及深度访谈中分别探讨了以下主题:单独关注新冠疫情控制、能力建设和信息、教育和宣传、麻风病病例搜索和监测、卫生工作者中的合并感染、交通问题。同样,本研究从深度访谈的项目管理人员、麻风病专家和规划管理人员中确定了六个主题,包括诊断困难、运营问题、康复问题、能力建设和信息教育与宣传活动以及前进方向。

局限性

本研究揭示了印度东部高麻风病流行地区农村人口的看法,这些看法可能不适用于城市地区或低流行地区。

结论

行政部门单独关注新冠疫情,将基础设施和人力资源仅转移到新冠疫情管理上,可能导致麻风病疫情再次爆发。需要建立有组织的运营框架,满足前线工作人员提供服务的需求,利用数字平台和社交媒体,并注重康复,以克服这一危机。

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