Tan Chingfen Graduate School of Nursing, Umass Chan Medical School, Worcester, MA 01655, USA.
College of Nursing, University of South Carolina, 1601 Greene Street, Columbia, SC 29208, USA.
Int J Environ Res Public Health. 2022 Oct 24;19(21):13817. doi: 10.3390/ijerph192113817.
Sickle cell disease (SCD) is a hemoglobinopathy that causes debilitating pain. Patients often report dissatisfaction during care seeking for pain or a sickle cell crisis (SCC). The Theory of Self-Care Management for SCD conceptualizes assertive communication as a self-care management resource that improves healthcare outcomes.
This pilot study aimed to determine whether adults with SCD could learn to use the Situation, Background, Assessment, Recommendation (SBAR) communication method using a web-based trainer, and it aimed to determine their perceptions of the training.
The participants included = 18 adults with SCD. Inter-rater reliability (IRR) among three reviewers was used to evaluate the participants' ability to respond as expected to prompts using SBAR communication within the web-based platform. Content analysis was used to describe the participants' perspectives of the acceptability of using the SBAR patient-HCP communication simulation.
The SBAR IRR ranged from 64 to 94%, with 72% to 94% of the responses being evaluated as the using of the SBAR component as expected. The predominant themes identified were (1) Patient-Provider Communication and Interaction; (2) Patients want to be Heard and Believed; (3) Accuracy of the ED Experience and Incorporating the Uniqueness of each Patient; and (4) the Overall Usefulness of the Video Trainer emerging.
This pilot study supported the usefulness and acceptability of a web-based intervention in training adults with SCD to use SBAR to enhance patient-HCP communication. Enhancing communication may mitigate the barriers that individuals with SCD encounter during care seeking and improve the outcomes. Additional studies with larger samples need to be conducted.
镰状细胞病（SCD）是一种血红蛋白病，会导致衰弱性疼痛。患者在寻求疼痛或镰状细胞危象（SCC）治疗时，常常对护理不满意。SCD 自我护理管理理论将坚定的沟通视为改善医疗保健结果的自我护理管理资源。
本试点研究旨在确定 SCD 成人是否可以使用基于网络的培训器学习使用情况、背景、评估、建议（SBAR）沟通方法，并确定他们对培训的看法。
参与者包括 18 名 SCD 成人。使用三位审阅者之间的组内相关系数（IRR）来评估参与者在基于网络的平台中使用 SBAR 沟通对提示做出预期响应的能力。内容分析用于描述参与者对使用 SBAR 患者-HCP 沟通模拟的可接受性的看法。
SBAR IRR 范围为 64%至 94%，72%至 94%的响应被评估为期望使用 SBAR 组件。确定的主要主题包括（1）患者-提供者沟通和互动；（2）患者希望被倾听和信任；（3）ED 体验的准确性和纳入每个患者的独特性；以及（4）视频培训师的整体有用性。
本试点研究支持基于网络的干预在培训 SCD 成人使用 SBAR 来增强患者-HCP 沟通方面的有效性和可接受性。加强沟通可以减轻 SCD 个体在寻求护理时遇到的障碍，并改善结果。需要进行更多具有更大样本量的研究。
