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Understanding the roots of mistrust in medicine: Learning from the example of sickle cell disease.

作者信息

LaMotte Julia E, Hills Gerard D, Henry Khajae, Jacob Seethal A

机构信息

Department of Pediatrics, Indiana University School of Medicine, Indianapolis, Indiana, USA.

Division of Pediatric Hematology/Oncology, Riley Hospital for Children, Indianapolis, Indiana, USA.

出版信息

J Hosp Med. 2022 Jun;17(6):495-498. doi: 10.1002/jhm.12800. Epub 2022 Feb 28.

DOI:10.1002/jhm.12800
PMID:35535934
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9303871/
Abstract
摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86de/9303871/1b004e783626/JHM-17-495-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86de/9303871/1b004e783626/JHM-17-495-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86de/9303871/1b004e783626/JHM-17-495-g002.jpg

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本文引用的文献

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Improving Outcomes for Patients With Sickle Cell Disease in the United States: Making the Case for More Resources, Surveillance, and Longitudinal Data.提高美国镰状细胞病患者的治疗效果:呼吁投入更多资源、加强监测并建立纵向数据。
JAMA Health Forum. 2021 Oct 1;2(10):e213467. doi: 10.1001/jamahealthforum.2021.3467.
2
Diversity of the National Medical Student Body - Four Decades of Inequities.国家医学生群体的多样性——四十年来的不平等。
N Engl J Med. 2021 Apr 29;384(17):1661-1668. doi: 10.1056/NEJMsr2028487.
3
When Actions Speak Louder Than Words - Racism and Sickle Cell Disease.
交叉性作为研究慢性疼痛中健康不平等问题的理论框架。
Br J Pain. 2023 Oct;17(5):479-490. doi: 10.1177/20494637231188583. Epub 2023 Jul 9.
4
Identifying Barriers to HPV Vaccination for Patients With Sickle Cell Disease and Childhood Cancer Survivors.识别镰状细胞病患者和儿童癌症幸存者 HPV 疫苗接种障碍。
J Pediatr Hematol Oncol. 2023 Nov 1;45(8):e940-e947. doi: 10.1097/MPH.0000000000002752. Epub 2023 Sep 8.
5
Comparison of CAT and short forms for PROMIS pain and physical health domains in children with sickle cell disease.比较 CAT 与 PROMIS 疼痛和生理健康简表在镰状细胞病患儿中的应用。
J Patient Rep Outcomes. 2023 Feb 14;7(1):12. doi: 10.1186/s41687-023-00553-3.
6
Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study.镰状细胞病患者使用 SBAR 作为沟通工具:一项试点研究。
Int J Environ Res Public Health. 2022 Oct 24;19(21):13817. doi: 10.3390/ijerph192113817.
行动胜于言语——种族主义与镰状细胞病
N Engl J Med. 2020 Nov 12;383(20):1902-1903. doi: 10.1056/NEJMp2022125. Epub 2020 Sep 1.
4
Comparison of US Federal and Foundation Funding of Research for Sickle Cell Disease and Cystic Fibrosis and Factors Associated With Research Productivity.比较美国联邦政府和基金会对镰状细胞病和囊性纤维化研究的资助,以及与研究生产力相关的因素。
JAMA Netw Open. 2020 Mar 2;3(3):e201737. doi: 10.1001/jamanetworkopen.2020.1737.
5
Estimated Life Expectancy and Income of Patients With Sickle Cell Disease Compared With Those Without Sickle Cell Disease.估算患有镰状细胞病与不患有镰状细胞病患者的预期寿命和收入。
JAMA Netw Open. 2019 Nov 1;2(11):e1915374. doi: 10.1001/jamanetworkopen.2019.15374.
6
Sickle cell disease.镰状细胞病。
Nat Rev Dis Primers. 2018 Mar 15;4:18010. doi: 10.1038/nrdp.2018.10.
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Stigma and Pain in Adolescents Hospitalized for Sickle Cell Vasoocclusive Pain Episodes.因镰状细胞血管阻塞性疼痛发作而住院的青少年的耻辱感与疼痛
Clin J Pain. 2018 May;34(5):438-444. doi: 10.1097/AJP.0000000000000553.
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Med Humanit. 2017 Mar;43(1):55-61. doi: 10.1136/medhum-2016-011072. Epub 2016 Nov 15.
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How sickle cell disease patients experience, understand and explain their pain: An Interpretative Phenomenological Analysis study.镰状细胞病患者如何体验、理解和解释他们的疼痛:一项解释现象学分析研究。
Br J Health Psychol. 2016 Feb;21(1):190-203. doi: 10.1111/bjhp.12157. Epub 2015 Sep 2.