Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Geriatrics Research, Education, and Clinical Center, James J. Peters VA Medical Center, Bronx, New York, USA.
J Palliat Med. 2023 Feb;26(2):244-247. doi: 10.1089/jpm.2022.0037. Epub 2022 Nov 17.
There is limited evidence regarding the challenges of providing hospice care to those dying at home during the COVID-19 pandemic. To describe the challenges of home hospice care and the specific types of disruptions in care processes experienced by patients and families. Qualitative study of the electronic medical record notes of a large New York City (NYC) home-based primary care program. Subjects were 58 patients referred to hospice who died during the initial NYC COVID-19 surge from March to June 2020. We identified six domains of disruptions in home hospice care: delayed hospice enrollment, inability to conduct home visits, lack of needed supplies, communication failures, strained caregivers, and limitations of telehealth. This study provides a critical first analysis of disruptions in home hospice care that can feasibly be addressed and must be prioritized by hospices throughout the ongoing pandemic and in advance of future emergencies.
关于在 COVID-19 大流行期间为在家中临终的患者提供临终关怀所面临的挑战,相关证据有限。本研究旨在描述居家临终关怀所面临的挑战,以及患者和家属在护理过程中经历的特定类型的中断。这是一项对纽约市(NYC)一个大型居家初级保健项目的电子病历记录进行的定性研究。研究对象为 58 名在 2020 年 3 月至 6 月期间纽约市 COVID-19 疫情初期被转介到临终关怀的患者,他们均已死亡。我们确定了居家临终关怀中存在的六个中断领域:临终关怀的延迟登记、无法进行家访、缺乏所需的用品、沟通失败、护理人员紧张以及远程医疗的限制。本研究首次对居家临终关怀中断进行了分析,这些中断在当前的大流行期间以及未来的紧急情况之前是可以解决的,临终关怀机构必须优先考虑这些问题。