Department of Social Work and Social Policy, School of Sociology and Population Studies, Renmin University of China, Beijing, China.
School of Social Work, University of Illinois at Urbana-Champaign, Champaign, USA.
Qual Life Res. 2023 Jul;32(7):1831-1842. doi: 10.1007/s11136-022-03307-8. Epub 2022 Nov 28.
This study aimed to systematically identify, appraise, and summarize the psychometric properties of instruments used to measure the quality of dying and death in Asian countries.
The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) was closely followed. The literature was searched using the following keywords and their synonyms: "death and dying," "measurement," and "Asian country" in CINAHL, PubMed, PsycInfo, Web of Science, and Cochrane Library from inception to April 2021. Two reviewers independently screened titles and abstracts and reviewed the full text. Two other reviewers independently assessed the quality of the identified studies in three steps: methodological quality evaluation, good measurement properties evaluation, and quality of evidence evaluation.
This review retrieved 37,195 studies, of which seven were finally included. Four instruments that assessed the quality of dying and death in Asian countries were identified: the Good Death Inventory (GDI), the Good Death Scale (GDS), and two versions of the Quality of Dying and Death (QODD) Questionnaires. All included studies failed to evaluate all the recommended psychometric properties, and none of the instruments provided strong evidence of their quality among Asian populations. Overall, the grade of evidence quality for the GDI was moderate, the highest among all identified instruments.
The GDI is by far the most reliable instrument for assessing the quality of dying and death in Asian populations. A lack of validation studies in Asian and Western cultures, however, warrants caution when drawing conclusions from the GDI.
本研究旨在系统地识别、评价和总结用于测量亚洲国家临终和死亡质量的工具的心理测量特性。
紧密遵循共识基础的健康测量工具选择标准(COSMIN)。从建库到 2021 年 4 月,使用 CINAHL、PubMed、PsycInfo、Web of Science 和 Cochrane Library 中的以下关键词及其同义词:“死亡和临终”、“测量”和“亚洲国家”进行文献检索。两名评审员独立筛选标题和摘要,并审查全文。另外两名评审员独立按照以下三个步骤评估确定研究的质量:方法学质量评估、良好测量特性评估和证据质量评估。
本综述共检索到 37195 篇研究,其中最终纳入 7 篇。确定了 4 种评估亚洲国家临终和死亡质量的工具:善终量表(GDI)、善终量表(GDS)和两个版本的死亡质量问卷(QODD)。所有纳入的研究都未能评估所有推荐的心理测量特性,而且这些工具都没有在亚洲人群中提供其质量的强有力证据。总体而言,GDI 的证据质量等级为中等,在所有确定的工具中最高。
到目前为止,GDI 是评估亚洲人群临终和死亡质量最可靠的工具。然而,由于缺乏在亚洲和西方文化中的验证研究,因此在从 GDI 得出结论时应谨慎。