School of Nursing, Sun Yat-sen University, Guangzhou, China.
School of Nursing, The Hong Kong Polytechnic University, Hong Kong, SAR, China.
J Pain Symptom Manage. 2019 Sep;58(3):472-480. doi: 10.1016/j.jpainsymman.2019.05.014. Epub 2019 Jun 5.
It is essential to evaluate good death of patients with cancer. However, currently, there is no validated measurement tool available in Mainland China.
To validate the Chinese version of the Good Death Inventory (GDI).
An online survey was distributed to the bereaved family members of patients with cancer (from 10 medical institutes) who died between January 2014 and December 2016. The survey included the demographic characteristics of the patients and their family members, the Chinese version of the GDI, overall satisfaction of family members regarding the end-of-life care, as well as the patients' overall quality of death and dying, and overall quality of life.
A total of 305 valid responses were analyzed. The average score of the GDI was 241.20 ± 39.45. The Cronbach's α coefficient of the GDI was 0.896 overall and ranged from 0.561 to 0.950 for the subdomains. The fit indices for the original 18-factor model were acceptable: root mean square error of approximation = 0.044, Comparative Fit Index = 0.900, Tucker-Lewis Index = 0.892, and standardized root mean square residual = 0.073. The total scores of the GDI were moderately correlated with overall satisfaction with medical care (r = 0.411, P < 0.01), patient's quality of life (r = 0.468, P < 0.01), and quality of death and dying (r = 0.441, P < 0.01).
The psychometric characteristics of the Chinese version of the GDI indicate that this questionnaire is reliable and valid. It can be used as a tool for the assessment of quality of death and dying of patients with cancer among the Chinese population.
评估癌症患者的善终至关重要。然而,目前中国内地尚未有经过验证的测量工具。
验证善终量表(Good Death Inventory,GDI)中文版的信度和效度。
通过在线问卷调查的方式,对 2014 年 1 月至 2016 年 12 月期间在 10 家医疗机构死亡的癌症患者的家属进行调查。调查内容包括患者及其家属的人口统计学特征、GDI 中文版、家属对临终关怀的总体满意度、患者的整体死亡质量和生活质量。
共分析了 305 份有效问卷。GDI 的平均得分为 241.20±39.45 分。GDI 的克朗巴赫 α 系数为 0.896,各维度的克朗巴赫 α 系数在 0.561 至 0.950 之间。原始 18 因子模型的拟合指数可接受:近似均方根误差为 0.044,比较拟合指数为 0.900,塔克-刘易斯指数为 0.892,标准化均方根残差为 0.073。GDI 总分与医疗总体满意度(r=0.411,P<0.01)、患者生活质量(r=0.468,P<0.01)和死亡质量(r=0.441,P<0.01)呈中度相关。
GDI 中文版的心理测量学特征表明,该问卷具有良好的信度和效度,可用于评估中国人群中癌症患者的死亡质量。