ALBusaidi Alya Mohammed Said, ALMasroori Salima Ali Saud, Awladthani Balqees Mohammed Said, ALKhaldi Sumaiya Abdullah, Al Alawi Noof, Al Salmani Asma Ali
Oman Medical Specialty Board (OMSB), Al-Athaiba, Oman.
Ministry of Health, Muscat, Oman.
Autism Dev Lang Impair. 2022 Nov 29;7:23969415221142262. doi: 10.1177/23969415221142262. eCollection 2022 Jan-Dec.
Raising a child with autism spectrum disorder (ASD) can have a significant impact on quality of life (QOL). This study was conducted to assess the QOL and coping strategies of parents of children with ASD in Oman.
This descriptive cross-sectional study was conducted at Al-Masarra psychiatric hospital. Telephone interviews were conducted with the parents of all children diagnosed with ASD and attending Al-Masarra Hospital between January 2018 and October 2021. Data were collected using the Ways of Coping Checklist-Revised and World Health Organization Quality of Life Assessment-Brief.
A total of 304 parents participated in the study (response rate: 100%), of which 59.5% were female. The mean age of the parents and children with ASD was 40.4 ± 6.9 and 8.4 ± 2.3 years, respectively. Most children with ASD were male (78.3%) and entirely dependent upon their parents (18.1%). Seeking social support was the most common coping strategy (75.53 ± 13.99), while escape avoidance was the least common (51.78 ± 8.04). Most parents (48.7%) rated their QOL as good to very good, with acceptable scores in the psychological (70.92 ± 11.22) and social (73.27 ± 11.46) domains, borderline in the physical health domain (63.51 ± 7.77), and poor in the environmental domain (58.31 ± 11.00).
Omani parents of children with ASD utilize various coping strategies, with coping skills considered a positive index for mental health in general. No significant differences were observed between Omani fathers and mothers in terms of QOL or coping strategies.
抚养一名患有自闭症谱系障碍（ASD）的儿童会对生活质量（QOL）产生重大影响。本研究旨在评估阿曼自闭症谱系障碍患儿家长的生活质量及应对策略。
本描述性横断面研究在马斯拉精神病医院进行。对2018年1月至2021年10月期间在马斯拉医院确诊患有自闭症谱系障碍并就诊的所有患儿的家长进行电话访谈。使用修订后的应对方式清单和世界卫生组织生活质量评估简表收集数据。
共有304名家长参与了本研究（应答率：100%），其中59.5%为女性。自闭症谱系障碍患儿家长及患儿的平均年龄分别为40.4±6.9岁和8.4±2.3岁。大多数自闭症谱系障碍患儿为男性（78.3%），且完全依赖父母（18.1%）。寻求社会支持是最常见的应对策略（75.53±13.99），而逃避回避是最不常见的（51.78±8.04）。大多数家长（48.7%）将他们的生活质量评为良好至非常好，在心理领域（70.92±11.22）和社会领域（73.27±11.46）得分可接受，在身体健康领域处于临界水平（63.51±7.77），在环境领域较差（58.31±11.00）。
阿曼自闭症谱系障碍患儿的家长采用多种应对策略，一般而言，应对技能被视为心理健康的积极指标。在生活质量或应对策略方面，阿曼父亲和母亲之间未观察到显著差异。
