Mavroeidi Nikoletta, Sifnaios Christos, Ntinou Ariadne, Iatrou Giorgos, Konstantakopoulou Olympia, Merino Martínez María, Nucifora Martina, Tanrikulu Ibrahim, Vadolas Antonios
Department of Scientific Documentation and Education, Child and Adolescent Center, 12123 Peristeri, Greece.
EPIONI Greek Carers Network, 15125 Marousi, Greece.
Int J Environ Res Public Health. 2024 Apr 13;21(4):474. doi: 10.3390/ijerph21040474.
Parents of autistic children experience high levels of parental stress and low quality of life related to the demanding child caring burden they experience. Parent education and training programs are acknowledged to improve parental well-being and reduce parenting stress. In the framework of the Erasmus+ Integrative Autism Parents Training Project (IPAT), we developed the IPAT Training Module based on parents' expressed needs, in order to improve parental quality of life (QoL) and decrease their perceived stress. Sixty-two parents from four countries participated in the IPAT Module Training activity. We used WHOQOL-BREF and Perceived Stress Scale (PSS-10 version) for QoL and stress, respectively, before and after training and a study-specific questionnaire to assess participants' satisfaction. Parents' QoL improved significantly in the environment domain and specific items, while stress levels remained unmodified. Training appeared more advantageous for parents with lower initial QoL and those whose child had been enrolled in a special education program for an extended duration. Parents were quite satisfied, in particular those with lower initial social relationships QoL. Larger studies including a control group are necessary to support preliminary evidence provided by this study, identify additional effect moderators, and disentangle the contribution of different components of the training.
自闭症儿童的父母承受着高水平的育儿压力,且由于育儿负担繁重,生活质量较低。家长教育和培训项目被认为可以改善家长的幸福感并减轻育儿压力。在伊拉斯谟+综合自闭症家长培训项目(IPAT)的框架下,我们根据家长表达的需求开发了IPAT培训模块,以提高家长的生活质量(QoL)并减轻他们感受到的压力。来自四个国家的62位家长参加了IPAT模块培训活动。我们在培训前后分别使用世界卫生组织生活质量简表(WHOQOL-BREF)和感知压力量表(PSS-10版本)来评估生活质量和压力,并使用一份针对该研究的问卷来评估参与者的满意度。家长的生活质量在环境领域和特定项目上有显著改善,而压力水平则没有变化。培训对初始生活质量较低以及孩子参加特殊教育项目时间较长的家长似乎更有利。家长们相当满意,尤其是那些初始社会关系生活质量较低的家长。需要开展包括对照组的更大规模研究,以支持本研究提供的初步证据,确定其他效应调节因素,并厘清培训不同组成部分的作用。