Chagas Paula S C, Magalhães Elton D D, Sousa Junior Ricardo R, Romeros Angélica C S F, Palisano Robert J, Leite Hércules R, Rosenbaum Peter
Graduate Program in Rehabilitation Sciences and Physical and Functional Performance, Faculty of Physical Therapy, Universidade Federal de Juiz de Fora, Juiz de Fora, Brazil.
Graduate Program in Rehabilitation Sciences, Department of Physical Therapy, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.
Dev Med Child Neurol. 2023 Jun;65(6):745-753. doi: 10.1111/dmcn.15484. Epub 2022 Dec 5.
To identify and provide a descriptive overview of the development of children, adolescents, and young adults with cerebral palsy (CP) in longitudinal studies; and map areas of focus according to the components of the World Health Organization's International Classification of Functioning, Disability, and Health (ICF).
Longitudinal studies of the development of children, adolescents, and/or young adults with CP were included in this scoping review. A search for eligible studies was conducted in the databases MEDLINE, PubMed, LILACS, EMBASE, Cochrane, CINAHL, and Scopus, and was restricted to the years 2002 to 2022. All outcome measures of the studies were classified into ICF components.
In the 56 studies included, there were 19 438 participants, involving mainly children, followed by adolescents, and lastly young adults. All components of the ICF were investigated and many studies reported outcomes in more than one component. Activity was the most investigated (67.9%; n = 38 studies), followed by body functions and structures (42.9%; n = 24 studies). Participation (14.2%; n = 8 studies) and environmental factors (3.6%; n = 2 studies) were the least studied. None of the studies investigated personal factors as an outcome.
This scoping review provides an overview of studies on the development of children, adolescents, and young adults with CP, using the ICF framework, identifying current areas of focus and gaps in the research. Future studies should target participation, contextual factors, and the transition into adulthood.
The International Classification of Functioning, Disability, and Health can be used to map a range of outcomes through developmental studies. The main outcomes investigated in children with cerebral palsy were activity, and body functions and structures. Little has been explored in participation and contextual factors outcomes over time. The main classification used to stratify the participants was the Gross Motor Function Classification System.
在纵向研究中识别并描述脑瘫（CP）儿童、青少年和青年的发育情况；并根据世界卫生组织《国际功能、残疾和健康分类》（ICF）的组成部分确定重点关注领域。
本范围综述纳入了对CP儿童、青少年和/或青年发育情况的纵向研究。在MEDLINE、PubMed、LILACS、EMBASE、Cochrane、CINAHL和Scopus数据库中检索符合条件的研究，检索时间限制在2002年至2022年。研究的所有结局指标均按照ICF的组成部分进行分类。
在纳入的56项研究中，共有19438名参与者，主要是儿童，其次是青少年，最后是青年。对ICF的所有组成部分都进行了研究，许多研究报告了不止一个组成部分的结局。活动是研究最多的（67.9%；n = 38项研究），其次是身体功能和结构（42.9%；n = 24项研究）。参与（14.2%；n = 8项研究）和环境因素（3.6%；n = 2项研究）的研究最少。没有研究将个人因素作为结局进行调查。
本范围综述使用ICF框架概述了CP儿童、青少年和青年发育情况的研究，确定了当前的重点关注领域和研究空白。未来的研究应关注参与、背景因素以及向成年期的过渡。
《国际功能、残疾和健康分类》可用于通过发育研究来确定一系列结局。脑瘫儿童研究的主要结局是活动、身体功能和结构。随着时间的推移，参与和背景因素结局方面的研究较少。用于对参与者进行分层的主要分类是粗大运动功能分类系统。
