“我希望医生知道我像蜡烛一样聪明”：马来西亚关键人群和艾滋病毒感染者与医生互动的经历和期望。
"I want the doctors to know that I am as bright as a candle": : Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV.
机构信息
Department of Human Development and Family Sciences, University of Delaware, 111 Alison Hall West, Newark, DE, 19716, USA.
Department of Art and Design, University of Delaware, Newark, DE, USA.
出版信息
AIDS Behav. 2023 Jul;27(7):2103-2112. doi: 10.1007/s10461-022-03942-9. Epub 2022 Dec 6.
Stigma in healthcare settings is a pernicious barrier to HIV prevention and treatment in contexts with strong HIV-related structural stigma. Previous work has documented substantial stigma towards key populations and people living with HIV (PLWH) among Malaysian doctors. The perspectives of Malaysian key populations and PLWH, however, remain understudied. In 2021, 34 Malaysian participants representing key populations and PLWH engaged in a photovoice study designed to qualitatively explore their experiences with and hopes for doctor interactions. Many participants reported stigma from their doctors, perceiving that doctors view them as not normal, sinful, misguided, and incapable. Several emphasized that they wear figurative masks to conceal aspects of themselves from doctors. Yet, many also remain hopeful for constructive relationships with doctors. They want their doctors to know that they are bright, capable, kind, and valuable. Interventions are needed to address stigma among doctors working in contexts with strong structural stigma.
在具有强烈与 HIV 相关的结构性污名的背景下，医疗环境中的污名将成为 HIV 预防和治疗的严重障碍。之前的研究已经记录了马来西亚医生对关键人群和 HIV 感染者（PLWH）存在大量污名。然而，马来西亚关键人群和 PLWH 的观点仍然研究不足。2021 年，34 名代表关键人群和 PLWH 的马来西亚参与者参与了一项摄影声音研究，旨在定性探索他们与医生互动的经历和希望。许多参与者报告说他们受到医生的污名化，认为医生认为他们不正常、有罪、误入歧途且没有能力。一些人强调，他们戴着象征性的面具，向医生隐瞒自己的某些方面。然而，许多人仍然对与医生建立建设性关系抱有希望。他们希望医生了解到他们聪明、有能力、善良且有价值。在具有强烈结构性污名的背景下，需要采取干预措施来解决医生中的污名问题。
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