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医疗保健和健康决策中的不确定性:来自跨学科团队的五项方法学和概念研究建议。

Uncertainty in healthcare and health decision making: Five methodological and conceptual research recommendations from an interdisciplinary team.

机构信息

Department of Psychological Sciences, Kent State University, 44242-0001, Kent, OH, USA.

Department of Communication Studies, Northwestern University, Evanston, IL, USA.

出版信息

J Behav Med. 2023 Aug;46(4):541-555. doi: 10.1007/s10865-022-00384-5. Epub 2022 Dec 27.

DOI:10.1007/s10865-022-00384-5
PMID:36574173
Abstract

Uncertainty is prevalent in various health contexts. It is imperative to understand how health-related uncertainty can impact individuals' healthcare experiences and health decision making. The purpose of the present paper is to provide five overarching recommendations from an interdisciplinary team of experts to address gaps in the literature on health-related uncertainty. We present a case study of health-related uncertainty within the specific context of alcohol use to demonstrate these gaps and provide context for the recommendations. The five recommendations concerning health-related uncertainty include: (1) use common, consistent terminology to discuss uncertainty, (2) clarify measures of individual differences in response to uncertainty, (3) increase research on uncertainty and affect, (4) investigate the impact of the channel through which uncertainty is communicated, and (5) develop theory-driven interventions to improve uncertainty management. We conclude by reviewing health contexts in which health-related uncertainty exists and note how our recommendations complement existing reviews and data.

摘要

不确定性在各种健康背景下普遍存在。了解健康相关不确定性如何影响个人的医疗保健体验和健康决策至关重要。本文的目的是提供来自跨学科专家团队的五项总体建议,以解决健康相关不确定性文献中的空白。我们提出了一个与酒精使用特定背景下健康相关不确定性的案例研究,以展示这些空白,并为建议提供背景。五项关于健康相关不确定性的建议包括:(1)使用通用、一致的术语来讨论不确定性;(2)澄清对不确定性反应的个体差异的衡量标准;(3)增加对不确定性和影响的研究;(4)研究不确定性传播渠道的影响;(5)制定基于理论的干预措施以改善不确定性管理。最后,我们回顾了存在健康相关不确定性的健康背景,并指出我们的建议如何补充现有的综述和数据。

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Communicating Scientific Uncertainty About the COVID-19 Pandemic: Online Experimental Study of an Uncertainty-Normalizing Strategy.关于 COVID-19 大流行的科学不确定性的沟通:一种不确定性规范化策略的在线实验研究。
J Med Internet Res. 2021 Apr 22;23(4):e27832. doi: 10.2196/27832.
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Who is susceptible to online health misinformation? A test of four psychosocial hypotheses.
病理学报告中不确定性的传达:来自一家专业癌症中心的描述性研究。
Acad Pathol. 2024 Feb 26;11(1):100109. doi: 10.1016/j.acpath.2024.100109. eCollection 2024 Jan-Mar.
谁容易受到网络健康谣言的影响?对四个心理社会假设的检验。
Health Psychol. 2021 Apr;40(4):274-284. doi: 10.1037/hea0000978. Epub 2021 Mar 1.
4
The communication of uncertainty in health: A scoping review.健康领域不确定性的沟通:范围综述。
Patient Educ Couns. 2021 Aug;104(8):1945-1961. doi: 10.1016/j.pec.2021.01.034. Epub 2021 Feb 1.
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Conversational Agents as Mediating Social Actors in Chronic Disease Management Involving Health Care Professionals, Patients, and Family Members: Multisite Single-Arm Feasibility Study.会话代理作为医疗保健专业人员、患者和家庭成员参与慢性病管理的中介社交行为者:多站点单臂可行性研究。
J Med Internet Res. 2021 Feb 17;23(2):e25060. doi: 10.2196/25060.
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US primary care in 2029: A Delphi survey on the impact of machine learning.2029 年美国初级保健:关于机器学习影响的德尔菲调查。
PLoS One. 2020 Oct 8;15(10):e0239947. doi: 10.1371/journal.pone.0239947. eCollection 2020.
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Coping and tolerance of uncertainty: Predictors and mediators of mental health during the COVID-19 pandemic.应对和容忍不确定性:新冠疫情期间心理健康的预测因素和中介因素。
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Intolerance of Uncertainty Moderates the Relation Between the Choice to Access Health Information and Post-Choice Distress Among Individuals Prone to Health Anxiety.健康焦虑倾向个体选择获取健康信息与选择后困扰的关系受不确定容忍度的调节。
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