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日本公民和医生的医疗保健道德态度:以患者为中心还是以家庭为中心?

Ethical Healthcare Attitudes of Japanese Citizens and Physicians: Patient-Centered or Family-Centered?

机构信息

Department of Biomedical Ethics, Faculty of Medicine, The University of Tokyo, Tokyo, Japan.

Department of Emergency and Critical Care Medicine, Tokyo Bay Urayasu Ichikawa Medical Center, Chiba, Japan.

出版信息

AJOB Empir Bioeth. 2023;14(3):125-134. doi: 10.1080/23294515.2022.2160511. Epub 2022 Dec 28.

Abstract

BACKGROUND

In current Western medical ethics, patient-centered medicine is considered the norm. However, the cultural background of collectivism in East Asia often leads to family-centered decision-making. In Japan, prior studies have reported that family-centered decision-making is more likely to be preferred in situations of disease notification and end-of-life decision-making. Nonetheless, there has been a recent shift from collectivism to individualism due to changes in the social structure. Various personal factors have also been reported to influence moral decision-making. Therefore, this study examined whether the current trend in attitudes of healthcare decision-making in Japan is family-centered or patient-centered among the general public and physicians. In addition, the personal factors that influence this tendency were examined.

METHODS

Three vignettes on disease notification and two vignettes on decision-making during end-of-life care were created, and 457 members of the public and 284 physicians were asked about their attitudes (behavioral intentions) regarding these vignettes.

RESULTS

Approximately, 95% of physicians were patient-centered in explaining the patient's severe medical condition. However, approximately 80% of physicians emphasized the wishes of the family over patient wishes when making life-sustaining decisions. Nearly half the general public emphasized the patient's wishes in the explanation of a severe medical condition and in life-sustaining decisions. In both the public and physician groups, personal factors, particularly the presence or absence of a disease under treatment and prior caregiving experience, influenced ethical attitudes toward medical treatment decisions.

CONCLUSIONS

In relatively low-conflict situations, such as the announcement of a patient's medical condition, physicians tended to be patient-centered, while they tended to be family-centered in situations of strong conflict in withholding life-sustaining treatment. The fact that personal factors influenced the family-centered response in situations of strong conflict highlights the importance of not only acquiring knowledge of medical ethics but also learning to fairly apply this knowledge in practice.

摘要

背景

在当前的西方医学伦理学中,以患者为中心的医学被视为规范。然而,东亚集体主义的文化背景常常导致以家庭为中心的决策。在日本,先前的研究报告表明,在疾病通知和临终决策方面,家庭为中心的决策更有可能被优先考虑。然而,由于社会结构的变化,日本的集体主义已经向个人主义转变。各种个人因素也被报道会影响道德决策。因此,本研究调查了在普通公众和医生中,日本医疗保健决策态度的当前趋势是家庭为中心还是以患者为中心。此外,还研究了影响这种趋势的个人因素。

方法

创建了三个关于疾病通知的情景和两个关于临终关怀决策的情景,询问了 457 名公众成员和 284 名医生对这些情景的态度(行为意图)。

结果

大约 95%的医生在解释患者严重的医疗状况时以患者为中心。然而,大约 80%的医生在做出维持生命的决策时,更强调家庭的意愿而不是患者的意愿。近一半的公众在解释严重的医疗状况和维持生命的决策时强调患者的意愿。在公众和医生群体中,个人因素,特别是是否患有正在治疗的疾病和以前的护理经验,都影响了对医疗治疗决策的伦理态度。

结论

在相对低冲突的情况下,例如宣布患者的医疗状况,医生倾向于以患者为中心,而在拒绝维持生命的治疗的情况下,他们倾向于以家庭为中心。个人因素在强烈冲突的情况下影响家庭为中心的反应这一事实,突出了不仅要获得医学伦理学知识,而且要学会在实践中公平地应用这些知识的重要性。

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