Asai A, Fukuhara S, Inoshita O, Miura Y, Tanabe N, Kurokawa K
Department of General Medicine and Clinical Epidemiology, Kyoto University School of Medicine.
J Med Ethics. 1997 Oct;23(5):323-7. doi: 10.1136/jme.23.5.323.
Life-sustaining treatment at the end of life gives rise to many ethical problems in Japan. Recent surveys of Japanese physicians suggested that they tend to treat terminally ill patients aggressively. We studied why Japanese physicians were reluctant to withhold or withdraw life-support from terminally ill patients and what affected their decisions.
A qualitative study design was employed, using a focus group interview with seven physicians, to gain an in-depth understanding of attitudes and rationales in Japan regarding medical care at the end of life.
Analysis revealed that physicians and patients' family members usually make decisions about life-sustaining treatment, while the patients' wishes are unavailable or not taken into account. Both physicians and family members tend to consider withholding or withdrawing life-sustaining treatment as abandonment or even killing. The strongest reason to start cardiopulmonary resuscitation- and to continue it until patients' family members arrive-seems to be the family members' desire to be at the bedside at the time of death. All physicians participating in our study regarded advance directives that provide information as to patients' wishes about life-sustaining treatment desirable. All expressed concern, however, that it would be difficult to forego or discontinue life-support based on a patient's advance directive, particularly when the patient's family opposed the directive.
Our group interview suggested several possible barriers to death with dignity and the appropriate use of advance directives in Japan. Further qualitative and quantitative research in this regard is needed.
在日本,临终时维持生命的治疗引发了诸多伦理问题。近期对日本医生的调查表明,他们往往积极治疗晚期绝症患者。我们研究了日本医生为何不愿对晚期绝症患者停止或撤销生命支持,以及哪些因素影响了他们的决策。
采用定性研究设计,对七名医生进行焦点小组访谈,以深入了解日本在临终医疗方面的态度和基本原理。
分析显示,通常由医生和患者家属决定维持生命的治疗,而患者的意愿未被知晓或未被考虑在内。医生和家属都倾向于将停止或撤销维持生命的治疗视为遗弃甚至谋杀。开始进行心肺复苏并持续至患者家属到达的最主要原因似乎是家属希望在患者死亡时在场。参与我们研究的所有医生都认为预先指示提供了患者对维持生命治疗的意愿,这是可取的。然而,所有人都担心,基于患者的预先指示放弃或停止生命支持会很困难,尤其是当患者家属反对该指示时。
我们的小组访谈揭示了在日本尊严死以及适当使用预先指示存在一些可能的障碍。在这方面需要进一步开展定性和定量研究。