Department of Adult Nursing (Y.S.), National College of Nursing Japan, Tokyo, Japan; Department of Palliative Nursing (Y.S., K.M., M.A., M.M.), Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan; (former) Department of Nursing (Y.S.), National Cancer Center Hospital, Tokyo, Japan.
Department of Palliative Nursing (Y.S., K.M., M.A., M.M.), Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
J Pain Symptom Manage. 2023 Apr;65(4):273-284. doi: 10.1016/j.jpainsymman.2022.12.012. Epub 2022 Dec 28.
Bereaved family members sometimes experience distress due to stressful life events. However, the effects of this distress on depression and grief remain unclear.
To clarify the degree of distress due to postbereavement stressful life events, its associated factors, especially social isolation, and its effects on major depressive disorder (MDD) and complicated grief (CG) risks among bereaved family members of patients with cancer.
This cross-sectional questionnaire survey was conducted in 2018 as part of the J-HOPE4 study. We recruited 1740 bereaved family members of patients with cancer who died from July to August of 2018. We assessed distress due to postbereavement stressful life events with the Bereavement Secondary Stressor Scale, social isolation with the Lubben Social Network Scale Short-Form, and the MDD and CG risk with the Patient Health Questionnaire-9 and Brief Grief Questionnaire, respectively.
Among the 913 (52.5%) respondents, 88%, 57%, 46%, 28%, and 19% experienced distress due to incidental tasks, daily life difficulties, financial problems, problems with other people, and deterioration of family relationships, respectively. More distress was associated with higher risks of MDD (odds ratio [OR] = 2.5, P < 0.01) and CG (OR = 2.5, P < 0.01). Social isolation and specific backgrounds were associated with more distress in response to stressful life events.
Most family members experienced distress due to stressful life events, which were risk factors for MDD and CG. Assessing risk factors for maladaptation to post-bereavement life changes and enhancing readiness to adapt to them is important.
丧亲家庭成员有时会因生活压力事件而感到痛苦。然而,这种痛苦对抑郁和悲伤的影响尚不清楚。
阐明丧亲后生活压力事件引起的痛苦程度、其相关因素,特别是社会隔离,以及其对癌症患者丧亲家庭成员发生重度抑郁症(MDD)和复杂性悲伤(CG)的风险的影响。
这是 2018 年作为 J-HOPE4 研究的一部分进行的横断面问卷调查。我们招募了 1740 名癌症患者的丧亲家庭成员,他们于 2018 年 7 月至 8 月去世。我们使用丧亲后压力性生活事件次级应激量表评估痛苦程度,使用 Lubben 社会网络量表短式评估社会隔离程度,使用患者健康问卷-9 和简要悲伤问卷分别评估 MDD 和 CG 风险。
在 913 名(52.5%)应答者中,分别有 88%、57%、46%、28%和 19%经历了偶然任务、日常生活困难、经济问题、与他人的问题和家庭关系恶化导致的痛苦。更多的痛苦与 MDD(比值比 [OR] = 2.5,P < 0.01)和 CG(OR = 2.5,P < 0.01)的风险增加相关。社会隔离和特定背景与对生活压力事件的更多痛苦相关。
大多数家庭成员经历了因生活压力事件引起的痛苦,这是 MDD 和 CG 的风险因素。评估适应丧亲后生活变化的适应不良风险因素并增强适应能力很重要。