Department of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Miyagi, Japan.
School of Human Welfare Studies, Kwansei Gakuin University, Nishinomiya, Hyogo, Japan.
Psychooncology. 2021 Jun;30(6):844-852. doi: 10.1002/pon.5642. Epub 2021 Feb 23.
To examine current financial status, changes before and after bereavement, and their effects on possible major depressive disorder (MDD) and complicated grief (CG) among bereaved family members of patients with cancer.
We conducted a nationwide cross-sectional questionnaire survey on 787 bereaved family members of patients with cancer in 71 palliative care institutions in Japan from May to July 2016. The survey assessed perceived level of concern regarding current financial status and whether it changed after bereavement. We also collected information on demographic factors and assessed the possible MDD and CG using the Patient Health Questionnaire-9 and Brief Grief Questionnaire, respectively. We then conducted bivariate analysis to examine the relationship between these factors and financial status.
A total of 491 (62%) questionnaires were returned. The majority of the participants (n = 382, 78%) reported having no or mild concerns about their livelihood, whereas 19% (n = 95) had moderate to severe concerns. Regarding the change in financial status after bereavement, 7% (n = 35) reported improvement, 28% (n = 131) reported worsening, and 65% (n = 308) reported no change. The prevalences of possible MDD and CG were 22% (n = 108) and 9% (n = 41), respectively, and were significantly lower among participants with less concern regarding their livelihood and whose financial status had not changed after bereavement (both p < 0.05).
About one-fifth of the bereaved family members reported financial difficulties to some extent; these were significantly associated with MDD and CG. These findings provide evidence of the need for psychosocial support including financial consultation for bereaved family members.
探讨癌症患者丧亲家庭成员目前的经济状况、丧亲前后的变化及其对可能出现的重度抑郁症(MDD)和复杂性哀伤(CG)的影响。
我们于 2016 年 5 月至 7 月在日本 71 家姑息治疗机构对 787 名癌症患者丧亲家庭成员进行了一项全国性的横断面问卷调查。该调查评估了受访者对当前经济状况的关注程度以及丧亲后是否发生了变化。我们还收集了人口统计学因素的信息,并分别使用患者健康问卷-9 和简要哀伤问卷评估了可能的 MDD 和 CG。然后,我们进行了双变量分析,以检验这些因素与经济状况之间的关系。
共收回 491 份(62%)问卷。大多数参与者(n=382,78%)报告对自己的生计没有或只有轻度担忧,而 19%(n=95)则表示有中度到重度的担忧。至于丧亲后经济状况的变化,7%(n=35)报告有所改善,28%(n=131)报告恶化,65%(n=308)报告没有变化。可能的 MDD 和 CG 的患病率分别为 22%(n=108)和 9%(n=41),对自己生计担忧较少且丧亲后经济状况未发生变化的参与者中,MDD 和 CG 的患病率显著较低(均 p<0.05)。
约五分之一的丧亲家庭成员在某种程度上报告存在经济困难;这些与 MDD 和 CG 显著相关。这些发现为丧亲家庭成员提供了心理社会支持的证据,包括经济咨询。