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家长在 COVID-19 大流行期间对自闭症谱系障碍幼儿进行早期干预家庭计划的在线辅导:手册制定和可行性研究。

Parents' online coaching in the early intervention home program for toddlers with autism spectrum disorder during the COVID-19 pandemic: Manual development and feasibility study.

机构信息

Centre for Rehabilitation and Special Needs Studies, Occupational Therapy Programme, Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, Kuala Lumpur, Malaysia.

Faculty of Medicine, Department of Pediatric, Universiti Kebangsaan Malaysia, Hospital Tunku Ampuan Besar Tuanku Aishah Rohani, Hospital Pakar Kanak-Kanak UKM, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur, Malaysia.

出版信息

PLoS One. 2024 Oct 15;19(10):e0309407. doi: 10.1371/journal.pone.0309407. eCollection 2024.

DOI:10.1371/journal.pone.0309407
PMID:39405327
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11478828/
Abstract

Early intervention improves the developmental progress among toddlers with ASD. Family involvement enhances the intervention outcome. This study aimed to develop and test the feasibility of an early intervention home program manual for toddlers with ASD. Method: This study involved three phases: (I) formulation of manual concept and content design (II) manual development through focus group discussion (n = 10) and content validation by experts (n = 9); (III) cognitive interview (n = 6) and feasibility study (n = 8). Result: Content Validity Index (I-CVI) for the developed manual ranged from .78-1.0, S-CVI/Ave .96, and S-CVI/UA .79. Cognitive interview among six parents reported that the manual was easy to understand. The feasibility study reported all eight parents benefitted from coaching sessions. Approximately 87.5% of the respondents found the program benefited their children and could easily implement the activities in their daily routines. Approximately 75% of respondents reported having greater confidence in managing their child's behaviors at home. Parent coaching using the developed home program is feasible and accepted by parents of a toddler with ASD. Further study should be developed to explore the effectiveness of parent coaching using the manual.

摘要

早期干预可改善 ASD 幼儿的发育进展。家庭参与可提高干预效果。本研究旨在为 ASD 幼儿开发和测试家庭早期干预方案手册的可行性。方法:本研究分为三个阶段:(一)制定手册概念和内容设计;(二)通过焦点小组讨论(n=10)和专家内容验证(n=9)开发手册;(三)认知访谈(n=6)和可行性研究(n=8)。结果:开发手册的内容效度指数(I-CVI)范围为 0.78-1.0,S-CVI/Ave 为 0.96,S-CVI/UA 为 0.79。6 位家长的认知访谈报告称,手册易于理解。可行性研究报告称,所有 8 位家长均从辅导中受益。约 87.5%的受访者认为该方案使他们的孩子受益,并能轻松地将活动融入日常生活。约 75%的受访者报告说,他们在家中管理孩子行为的信心有所增强。使用开发的家庭方案进行家长辅导是可行的,并为 ASD 幼儿的家长所接受。应进一步研究以探索使用手册进行家长辅导的效果。

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本文引用的文献

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Autism intervention meta-analysis of early childhood studies (Project AIM): updated systematic review and secondary analysis.自闭症儿童早期干预元分析研究(Project AIM):更新的系统评价和二次分析。
BMJ. 2023 Nov 14;383:e076733. doi: 10.1136/bmj-2023-076733.
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Effects of Parent-Implemented Interventions on Outcomes of Children with Autism: A Meta-Analysis.家长实施干预对自闭症儿童结果的影响:荟萃分析。
J Autism Dev Disord. 2023 Nov;53(11):4147-4163. doi: 10.1007/s10803-022-05688-8. Epub 2022 Aug 22.
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Parental experience of parent-mediated intervention for children with ASD: A systematic review and qualitative evidence synthesis.父母对自闭症谱系障碍儿童进行父母介导干预的经验:一项系统综述与定性证据综合分析
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