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面向口吃者的脸书群组:面对面支持小组的延伸与补充。

Facebook groups for people who stutter: An extension of and supplement to in-person support groups.

作者信息

Raj Erik X, Daniels Derek E, Thomson Paula E

机构信息

Monmouth University, Department of Speech-Language Pathology, 400 Cedar Avenue, West Long Branch, NJ 07764, USA.

Wayne State University, Department of Communication Sciences and Disorders, 5201 Cass Avenue, 103 Prentis Building, Detroit, MI 48202, USA.

出版信息

J Commun Disord. 2023 Jan-Feb;101:106295. doi: 10.1016/j.jcomdis.2022.106295. Epub 2023 Jan 3.

Abstract

INTRODUCTION

Online support group experiences, using social networking websites like Facebook, have shown much promise in past research unrelated to stuttering. Therefore, this study aimed to determine the utility of a Facebook-based stuttering support group that was created as an extension of and supplement to an in-person stuttering support group as a means of providing psychosocial support for people who stutter (PWS).

METHOD

A qualitative approach that was inspired by ethnography was used to explore the experiences of seven participants (six participants who stutter and one participant who does not stutter) who digitally connect on a private Facebook-based stuttering support group that was created as an extension of and supplement to an already existing in-person stuttering support group. The main question posed to the participants related to describing their experiences being a member of the Facebook-based stuttering support group.

RESULTS

Data analysis revealed two major themes, which included the benefits and challenges of participating in a Facebook-based stuttering support group.  Each major theme contained five subthemes. Specific results are discussed with reference to past research, as well as implications for practice and recommendations for future research.

CONCLUSIONS

There are numerous benefits and challenges associated with being a member of a Facebook-based stuttering support group.  However, the overall utility of a Facebook-based stuttering support group, used in tandem with an in-person stuttering support experience, seems to provide members with a useful and impactful way to gain psychosocial support from other PWS.

摘要

引言

在过去与口吃无关的研究中,利用脸书等社交网站的在线支持小组经验显示出了很大的前景。因此,本研究旨在确定一个基于脸书的口吃支持小组的效用,该小组是作为面对面口吃支持小组的延伸和补充而创建的,旨在为口吃者提供心理社会支持。

方法

采用受民族志启发的定性方法,探索七名参与者(六名口吃者和一名非口吃者)的经历,他们在一个基于脸书的私人口吃支持小组上进行数字连接,该小组是作为一个现有面对面口吃支持小组的延伸和补充而创建的。向参与者提出的主要问题与描述他们作为基于脸书的口吃支持小组成员的经历有关。

结果

数据分析揭示了两个主要主题,包括参与基于脸书的口吃支持小组的益处和挑战。每个主要主题包含五个子主题。将结合过去的研究讨论具体结果,以及对实践的启示和对未来研究的建议。

结论

作为基于脸书的口吃支持小组成员有许多益处和挑战。然而,与面对面口吃支持经验相结合使用的基于脸书的口吃支持小组的总体效用,似乎为成员提供了一种从其他口吃者那里获得心理社会支持的有用且有影响力的方式。

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