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为什么口吃者会参加口吃支持小组?

Why do people who stutter attend stuttering support groups?

机构信息

Department of Speech Language Pathology and Audiology, Faculty of Humanities, University of Pretoria, Pretoria.

出版信息

S Afr J Commun Disord. 2023 Aug 3;70(1):e1-e8. doi: 10.4102/sajcd.v70i1.958.

Abstract

BACKGROUND

Stuttering support groups (SSGs) have been a long-standing invaluable resource for people who stutter (PWS) but research into SSGs is only emerging. Speech-language therapists (SLTs) need further insight to successfully facilitate SSGs.

OBJECTIVES

To determine PWS' perspectives regarding why they attend SSGs in South Africa.

METHOD

Thirteen PWS who attend SSGs, between 20 and 58 years old, were a part of this qualitative study. Purposive sampling was utilised. Semi-structured telephonic interviews were used and data was analysed thematically.

RESULTS

Four themes, namely, 'altered perceptions', 'increased sense of community', 'support group reciprocity', and 'support group environment, participants and topics', were identified. The results yielded clinical implications which included SLTs encouraging: (1) improved perceptions of being a PWS through education and self-empowerment, (2) PWS' connections between meetings to increase the sense of community, (3) reciprocity in meetings, (4) sharing personal stories to promote learning and general self-management and (5) support, praise and education to empower and encourage PWS. This study's findings show that SSGs helped PWS accept their stutter and gain confidence. This study showcased how SSGs can help PWS manage their fluency and gain confidence. Additionally, this study supports current research which suggests that dysfluency and social-emotional well-being should be equally addressed.

CONCLUSION

Recommendations were generated from PWS' perspectives and included focusing discussions on fluency, emotions and sharing personal stories. Insights from PWS helped better inform SLTs of their role within SSGs including guiding and facilitating conversations.Contribution: People who stutters' perspectives can be used in clinical practice to help SLTs meet the needs of PWS and guide best practice when facilitating SSGs.

摘要

背景

口吃支持小组(SSG)一直是口吃者(PWS)的宝贵资源,但对口吃支持小组的研究才刚刚开始。言语治疗师(SLT)需要进一步深入了解,才能成功地促进口吃支持小组的开展。

目的

确定 PWS 参加南非口吃支持小组的原因。

方法

本研究为定性研究,共纳入 13 名年龄在 20 至 58 岁之间的参加口吃支持小组的 PWS。采用目的性抽样。使用半结构式电话访谈收集数据,并进行主题分析。

结果

确定了四个主题,即“改变观念”、“增强社区意识”、“支持小组的互惠性”和“支持小组的环境、参与者和主题”。研究结果产生了临床意义,包括 SLT 鼓励:(1)通过教育和自我赋权改善对口吃者的看法;(2)鼓励 PWS 在会议之间建立联系以增强社区意识;(3)在会议中实现互惠;(4)分享个人故事以促进学习和一般自我管理;(5)支持、赞扬和教育以赋予和鼓励 PWS。本研究的结果表明,口吃支持小组帮助 PWS 接受自己的口吃并增强信心。本研究展示了口吃支持小组如何帮助 PWS 管理他们的流畅度并增强信心。此外,本研究支持了当前的研究,即不流畅和社会情感福祉应该同样得到关注。

结论

从 PWS 的角度提出了建议,包括将讨论重点放在流畅度、情绪和分享个人故事上。PWS 的观点可以帮助 SLT 了解他们在口吃支持小组中的角色,包括指导和促进对话。

贡献

口吃者的观点可以在临床实践中使用,以帮助 SLT 满足 PWS 的需求,并在促进口吃支持小组时指导最佳实践。

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