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Am J Speech Lang Pathol. 2021 Nov 4;30(6):2394-2413. doi: 10.1044/2021_AJSLP-21-00078. Epub 2021 Sep 16.
2
'Satan is holding your tongue back': Stuttering as moral failure.“撒旦在阻碍你开口”:口吃被视为道德失败。
Afr J Disabil. 2021 Apr 23;10:773. doi: 10.4102/ajod.v10i0.773. eCollection 2021.
3
Group Experiences and Individual Differences in Stuttering.口吃的群体经验与个体差异。
J Speech Lang Hear Res. 2019 Dec 12;62(12):4335-4350. doi: 10.1044/2019_JSLHR-19-00138. Print 2019 Dec 18.
4
The utility of stuttering support organization conventions for young people who stutter.口吃支持组织惯例对口吃年轻人的效用。
J Fluency Disord. 2019 Dec;62:105724. doi: 10.1016/j.jfludis.2019.105724. Epub 2019 Oct 5.
5
What do people search for in stuttering therapy: Personal goal-setting as a gold standard?人们在口吃治疗中搜索什么:个人目标设定作为黄金标准?
J Commun Disord. 2020 May-Jun;85:105944. doi: 10.1016/j.jcomdis.2019.105944. Epub 2019 Oct 1.
6
Self-acceptance, resilience, coping and satisfaction of life in people who stutter.口吃者的自我接纳、韧性、应对方式和生活满意度。
J Fluency Disord. 2019 Mar;59:52-63. doi: 10.1016/j.jfludis.2018.10.004. Epub 2018 Nov 1.
7
The Impact of Stuttering on Development of Self-Identity, Relationships, and Quality of Life in Women Who Stutter.口吃对女性自我认同、人际关系和生活质量的发展的影响。
Am J Speech Lang Pathol. 2018 Oct 19;27(3S):1244-1258. doi: 10.1044/2018_AJSLP-ODC11-17-0201.
8
Self-report of self-disclosure statements for stuttering.口吃自我表露陈述的自我报告。
J Fluency Disord. 2018 Dec;58:22-34. doi: 10.1016/j.jfludis.2018.09.004. Epub 2018 Sep 28.
9
A comparison of three strategies for reducing the public stigma associated with stuttering.三种减少与口吃相关的公众污名化策略的比较。
J Fluency Disord. 2016 Dec;50:44-58. doi: 10.1016/j.jfludis.2016.09.004. Epub 2016 Sep 30.
10
Self-acceptance of stuttering: A preliminary study.口吃的自我接纳:一项初步研究。
J Commun Disord. 2016 Mar-Apr;60:27-38. doi: 10.1016/j.jcomdis.2016.02.003. Epub 2016 Feb 17.

为什么口吃者会参加口吃支持小组?

Why do people who stutter attend stuttering support groups?

机构信息

Department of Speech Language Pathology and Audiology, Faculty of Humanities, University of Pretoria, Pretoria.

出版信息

S Afr J Commun Disord. 2023 Aug 3;70(1):e1-e8. doi: 10.4102/sajcd.v70i1.958.

DOI:10.4102/sajcd.v70i1.958
PMID:37782242
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10476235/
Abstract

BACKGROUND

Stuttering support groups (SSGs) have been a long-standing invaluable resource for people who stutter (PWS) but research into SSGs is only emerging. Speech-language therapists (SLTs) need further insight to successfully facilitate SSGs.

OBJECTIVES

To determine PWS' perspectives regarding why they attend SSGs in South Africa.

METHOD

Thirteen PWS who attend SSGs, between 20 and 58 years old, were a part of this qualitative study. Purposive sampling was utilised. Semi-structured telephonic interviews were used and data was analysed thematically.

RESULTS

Four themes, namely, 'altered perceptions', 'increased sense of community', 'support group reciprocity', and 'support group environment, participants and topics', were identified. The results yielded clinical implications which included SLTs encouraging: (1) improved perceptions of being a PWS through education and self-empowerment, (2) PWS' connections between meetings to increase the sense of community, (3) reciprocity in meetings, (4) sharing personal stories to promote learning and general self-management and (5) support, praise and education to empower and encourage PWS. This study's findings show that SSGs helped PWS accept their stutter and gain confidence. This study showcased how SSGs can help PWS manage their fluency and gain confidence. Additionally, this study supports current research which suggests that dysfluency and social-emotional well-being should be equally addressed.

CONCLUSION

Recommendations were generated from PWS' perspectives and included focusing discussions on fluency, emotions and sharing personal stories. Insights from PWS helped better inform SLTs of their role within SSGs including guiding and facilitating conversations.Contribution: People who stutters' perspectives can be used in clinical practice to help SLTs meet the needs of PWS and guide best practice when facilitating SSGs.

摘要

背景

口吃支持小组(SSG)一直是口吃者(PWS)的宝贵资源,但对口吃支持小组的研究才刚刚开始。言语治疗师(SLT)需要进一步深入了解,才能成功地促进口吃支持小组的开展。

目的

确定 PWS 参加南非口吃支持小组的原因。

方法

本研究为定性研究,共纳入 13 名年龄在 20 至 58 岁之间的参加口吃支持小组的 PWS。采用目的性抽样。使用半结构式电话访谈收集数据,并进行主题分析。

结果

确定了四个主题,即“改变观念”、“增强社区意识”、“支持小组的互惠性”和“支持小组的环境、参与者和主题”。研究结果产生了临床意义,包括 SLT 鼓励:(1)通过教育和自我赋权改善对口吃者的看法;(2)鼓励 PWS 在会议之间建立联系以增强社区意识;(3)在会议中实现互惠;(4)分享个人故事以促进学习和一般自我管理;(5)支持、赞扬和教育以赋予和鼓励 PWS。本研究的结果表明,口吃支持小组帮助 PWS 接受自己的口吃并增强信心。本研究展示了口吃支持小组如何帮助 PWS 管理他们的流畅度并增强信心。此外,本研究支持了当前的研究,即不流畅和社会情感福祉应该同样得到关注。

结论

从 PWS 的角度提出了建议,包括将讨论重点放在流畅度、情绪和分享个人故事上。PWS 的观点可以帮助 SLT 了解他们在口吃支持小组中的角色,包括指导和促进对话。

贡献

口吃者的观点可以在临床实践中使用,以帮助 SLT 满足 PWS 的需求,并在促进口吃支持小组时指导最佳实践。