Cheak-Zamora Nancy, Odunleye Olakunle
Department of Health Sciences, School of Health Professions, University of Missouri, Columbia, Missouri, USA.
Autism Adulthood. 2022 Sep 1;4(3):193-202. doi: 10.1089/aut.2021.0043. Epub 2022 Aug 31.
Half a million autistic youth will enter adulthood over the next decade. Support services to help youth successfully transition into adulthood are limited and not tailored to the autistic youth and young adult's needs. This study utilized qualitative methods to understand how autistic young adults experience and cope with stress during the transition to adulthood.
The study recruited 15 autistic young adults aged 18-25 years. Each participant completed a short demographic survey and individual interview. Interviews were conducted online via Google Docs or in-person based on the participants' preference. Three researchers organized and coded the data using a thematic approach.
Based on our analysis, three themes emerged. Within the first theme, young adults in this study described experiencing a great deal of stress and provided examples of how it manifested in physical and emotional ways. In the second theme, youth described that the causes of this stress stemmed from general problems handling new or multiple responsibilities and specific problems in school, work, financial responsibilities, and social relationships. Finally, young adults described using various coping mechanisms including relaxation techniques, use of technology, and friends and family social support.
The study findings can help service providers and family members find new ways to help autistic young adults manage their stress. This study provides a unique understanding of stress and coping from the autistic individuals' point of view. Stress is most often derived from managing new responsibilities in general and school, work, money, and relationships in particular. Tailored support services that follow the individual from adolescence through adulthood are needed to manage these stressors. Researchers and service providers can utilize these recommendations for future program development. Furthermore, the method used in this study can be replicated to facilitate autistic individual input on future program development.
在未来十年里,将有50万自闭症青年步入成年期。帮助青年成功过渡到成年期的支持服务有限,且未针对自闭症青年和年轻成年人的需求进行定制。本研究采用定性方法,以了解自闭症青年在向成年期过渡过程中如何体验和应对压力。
该研究招募了15名年龄在18至25岁之间的自闭症青年。每位参与者都完成了一份简短的人口统计学调查问卷和个人访谈。访谈根据参与者的偏好,通过谷歌文档在线进行或面对面进行。三位研究人员采用主题分析法对数据进行整理和编码。
基于我们的分析,出现了三个主题。在第一个主题中,本研究中的年轻成年人描述了经历大量压力的情况,并举例说明了压力在身体和情感方面的表现方式。在第二个主题中,青年们描述了这种压力的成因源于处理新的或多项责任的一般问题,以及在学校、工作、经济责任和社会关系方面的具体问题。最后,年轻成年人描述了使用各种应对机制,包括放松技巧、技术应用以及朋友和家人的社会支持。
研究结果可帮助服务提供者和家庭成员找到帮助自闭症青年应对压力的新方法。本研究从自闭症个体的角度提供了对压力和应对方式的独特理解。压力最常源于总体上管理新责任,特别是在学校、工作、金钱和人际关系方面。需要有从青少年到成年期全程跟进个人情况的定制支持服务,以应对这些压力源。研究人员和服务提供者可将这些建议用于未来的项目开发。此外,本研究中使用的方法可被复制,以促进自闭症个体对未来项目开发的参与。