Circ Cardiovasc Qual Outcomes. 2023 Feb;16(2):e000114. doi: 10.1161/HCQ.0000000000000114. Epub 2023 Jan 12.
This summary from the American Heart Association provides guidance for the provision of primary and subspecialty palliative care in pediatric congenital and acquired heart disease.
A comprehensive literature search was conducted from January 2010 to December 2021. Seminal articles published before January 2010 were also included in the review. Human subject studies and systematic reviews published in English in PubMed, ClinicalTrials.gov, and the Cochrane Collaboration were included. Structure: Although survival for pediatric congenital and acquired heart disease has tremendously improved in recent decades, morbidity and mortality risks remain for a subset of young people with heart disease, necessitating a role for palliative care. This scientific statement provides an evidence-based approach to the provision of primary and specialty palliative care for children with heart disease. Primary and specialty palliative care specific to pediatric heart disease is defined, and triggers for palliative care are outlined. Palliative care training in pediatric cardiology; diversity, equity, and inclusion considerations; and future research directions are discussed.
本文摘译自美国心脏协会，为儿童先天性和后天性心脏病的初级和亚专科姑息治疗提供指导。
从 2010 年 1 月至 2021 年 12 月进行了全面的文献检索。还纳入了 2010 年 1 月之前发表的重要文章。纳入了在 PubMed、ClinicalTrials.gov 和 Cochrane 协作网以英文发表的人类研究和系统评价。
尽管近几十年来儿童先天性和后天性心脏病的生存率有了显著提高，但仍有一部分患有心脏病的年轻人存在发病和死亡风险，这需要姑息治疗。本科学声明提供了一种循证方法，用于为患有心脏病的儿童提供初级和专业姑息治疗。定义了针对儿科心脏病的初级和专业姑息治疗，并概述了姑息治疗的触发因素。讨论了儿科心脏病学中的姑息治疗培训、多样性、公平性和包容性考虑因素以及未来的研究方向。
