Everitt Melanie D
Department of Pediatrics, Children's Hospital Colorado, University of Colorado, Aurora, CO, United States.
Front Transplant. 2023 Jun 27;2:1221166. doi: 10.3389/frtra.2023.1221166. eCollection 2023.
Heart transplant is performed annually in over 600 children worldwide to treat life-limiting cardiac disease. Conversations regarding waitlist mortality, post-transplant morbidity and mortality, and goals of care are commonplace pre-transplant. However, there is a void of information and resources for providers and families when end-stage disease recurs in the long-term transplant recipient. The purpose of this review is to discuss the care of the pediatric heart transplant recipient with chronic cardiac dysfunction occurring years after a successful transplant. This includes a need for transplant providers to have education and training related both to palliative care and medical ethics to improve shared decision making with patients and families.
全球每年有超过600名儿童接受心脏移植以治疗危及生命的心脏病。在移植前，关于等待名单上的死亡率、移植后的发病率和死亡率以及护理目标的讨论很常见。然而，对于长期移植受者出现终末期疾病时的医疗服务提供者和家庭来说，信息和资源存在空白。本综述的目的是讨论成功移植数年之后出现慢性心脏功能障碍的小儿心脏移植受者的护理。这包括移植医疗服务提供者需要接受与姑息治疗和医学伦理相关的教育和培训，以改善与患者及其家庭的共同决策。
