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自闭症谱系障碍儿童家庭成员的感知社会支持、正常化与主观幸福感

Perceived Social Support, Normalization, and Subjective Well-Being Among Family Members of a Child with Autism Spectrum Disorder.

作者信息

Hamama Liat

机构信息

The Bob Shapell School of Social Work, Tel Aviv University, 69978, Ramat Aviv, Israel.

出版信息

J Autism Dev Disord. 2024 Apr;54(4):1468-1481. doi: 10.1007/s10803-022-05857-9. Epub 2023 Jan 13.

DOI:10.1007/s10803-022-05857-9
PMID:36637591
Abstract

The experience of family members of children with autism spectrum disorder (ASD) is not uniform. This study focused on mothers of a child with ASD (Study 1) and typically developing siblings (TDSs) during their emerging adulthood (Study 2). Similarities and differences were explored regarding a proposed model examining the paths of perceived social support (PSS) and normalization (a coping strategy) with subjective well-being: satisfaction with life (SWL) and positive affect (PA). Similarities were found in the paths between PSS, normalization, and SWL, in mothers and TDSs, but differences emerged regarding PA. These findings highlight the importance of PSS as a resource that contributes to normalization and SWL. Professional awareness of family members' PSS and their engagement in normalization is needed.

摘要

自闭症谱系障碍(ASD)患儿家庭成员的经历并不一致。本研究聚焦于患有ASD儿童的母亲(研究1)以及处于成年初期的发育正常的兄弟姐妹(TDS,研究2)。针对一个提出的模型进行了异同探讨,该模型考察了感知社会支持(PSS)和正常化(一种应对策略)与主观幸福感(即生活满意度(SWL)和积极情感(PA))之间的路径。在母亲和TDS中,PSS、正常化和SWL之间的路径存在相似之处,但在PA方面出现了差异。这些发现凸显了PSS作为一种有助于正常化和SWL的资源的重要性。需要专业人员了解家庭成员的PSS及其在正常化过程中的参与情况。

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Brain Sci. 2021 Mar 2;11(3):309. doi: 10.3390/brainsci11030309.
2
Seeing the siblings: Gender differences in emerging-adult siblings of individuals with autism spectrum disorder.看到兄弟姐妹:自闭症谱系障碍个体的成年早期兄弟姐妹的性别差异。
Res Dev Disabil. 2021 Jan;108:103829. doi: 10.1016/j.ridd.2020.103829. Epub 2020 Dec 9.
3
Parental stress, involvement, and family quality of life in mothers and fathers of children with autism spectrum disorder in mainland China: A dyadic analysis.
中国大陆自闭症谱系障碍儿童的父母压力、参与度和家庭生活质量:一项对偶分析。
Res Dev Disabil. 2020 Dec;107:103791. doi: 10.1016/j.ridd.2020.103791. Epub 2020 Oct 19.
4
Siblings of children with autism spectrum disorders: social support and family quality of life.自闭症谱系障碍儿童的兄弟姐妹:社会支持和家庭生活质量。
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Approaches to Photoprotection and Normalization in Highly Adherent Families of Children With Xeroderma Pigmentosum in the United Kingdom.英国色素沉着性干皮病高度黏附性患儿家庭的光保护和正常化方法
Qual Health Res. 2020 Jul;30(8):1275-1286. doi: 10.1177/1049732319826561. Epub 2019 Feb 9.
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Perceived social support and quality of life of parents of children with Autism.自闭症儿童家长的感知社会支持与生活质量
Niger J Clin Pract. 2018 Sep;21(9):1182-1189. doi: 10.4103/njcp.njcp_13_18.
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