University of Turku, Finland.
Kuopio University Hospital, Finland; University of Eastern Finland, Finland.
Nurs Ethics. 2023 May;30(3):462-476. doi: 10.1177/09697330221134948. Epub 2023 Jan 23.
Shared responsibility is an essential part of family-centred care and it characterizes the relationship between parents and healthcare professionals. Despite this, little is known about their shared responsibility for decision-making in neonatal intensive care units.
The aim of this scoping review was to identify previous studies on the subject and to summarize the knowledge that has been published so far.
The review was conducted using electronic searches in the CINAHL, PubMed, Scopus and PsycINFO databases and manual searches of the reference lists of the selected papers. The searches were limited to peer-reviewed papers that had been published in English from 2010 to September 2021. The data were selected based on inclusion and exclusion criteria and the findings were inductively summarized. We identified eight papers that met the inclusion criteria.
The scoping review was conducted according to good scientific practice by respecting authorship and reporting the study processes accurately, honestly and transparently.
The results showed that shared responsibility for decision-making was based on the parents' intentions, but the degree to which they were willing to take responsibility varied. The facilitating and inhibiting factors for shared responsibility for decision-making were related to the communication between parents and professionals. The impact was related to the parents' emotions.
It is essential that parents and professionals negotiate how both parties will contribute to their shared responsibility for decision-making. This will enable them to reach a mutual understanding of what is in the infants' best interests and to mitigate the emotional burden of decisions in neonatal intensive care units. More research is needed to clarify the concept of shared responsibility for decision-making in this intensive care context.
共同责任是以家庭为中心的护理的重要组成部分，它体现了父母和医疗保健专业人员之间的关系。尽管如此，人们对他们在新生儿重症监护病房中共同决策的责任知之甚少。
本综述的目的是确定以前关于该主题的研究，并总结迄今为止发表的知识。
使用 CINAHL、PubMed、Scopus 和 PsycINFO 数据库进行电子检索，并手动检索选定论文的参考文献列表，进行综述。检索仅限于 2010 年至 2021 年 9 月以英文发表的同行评议论文。根据纳入和排除标准选择数据，对结果进行归纳总结。我们确定了符合纳入标准的八篇论文。
根据良好的科学实践进行了范围综述，准确、诚实地报告了研究过程，并保持透明。
结果表明，共同决策的责任基于父母的意图，但他们愿意承担责任的程度有所不同。共同决策的促进和抑制因素与父母和专业人员之间的沟通有关。影响与父母的情绪有关。
父母和专业人员必须协商双方将如何为共同决策承担责任。这将使他们能够就什么符合婴儿的最佳利益达成共识，并减轻新生儿重症监护病房决策的情感负担。需要进一步的研究来澄清这个重症监护环境中共同决策责任的概念。
