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农村地区精神分裂症患者家庭照顾者的生活质量。

Quality of life among family caregivers of people with schizophrenia in rural China.

机构信息

Department of Social Work and Social Administration, University of Hong Kong, Hong Kong SAR, China.

Institute of Advanced Studies in Humanities and Social Sciences, Beijing Normal University, Zhuhai, 519087, China.

出版信息

Qual Life Res. 2023 Jun;32(6):1759-1769. doi: 10.1007/s11136-023-03349-6. Epub 2023 Jan 30.

Abstract

PURPOSES

To investigate quality of life (QoL) of family caregivers of people with schizophrenia and examine the influencing factors of the QoL in a Chinese rural area.

METHODS

This study included people with schizophrenia (n = 269) and their family caregivers (n = 269) from Xinjin district, Chengdu, China. Family caregivers' QoL was measured by the World Health Organization Quality of Life-Brief Form and its influencing factors was analyzed by the multivariate regression.

RESULTS

Family caregivers of people with schizophrenia had very poor QoL across four domains. The regression analysis showed that physical domain of QoL was significantly associated with age, psychiatric symptoms of people with schizophrenia, and caregiving burden of family caregivers (p < 0.05). Psychological domain of QoL was significantly related to family caregivers' affiliate stigma, caregiving burden, and psychiatric symptoms of people with schizophrenia (p < 0.05). Social domain of QoL was significantly associated with age and psychiatric symptoms of people with schizophrenia, and affiliate stigma of family caregivers (p < 0.05). Environmental domain of QoL was significantly related to age and psychiatric symptoms of people with schizophrenia, and family caregivers' caregiving burden (p < 0.05).

CONCLUSION

Family caregivers of people with schizophrenia had poor QoL in rural China. Family caregivers' QoL is significantly impacted by age and psychiatric symptoms of people with schizophrenia, caregivers' affiliate stigma and caregiving burden. Providing social support and psychosocial interventions for family caregivers of people with schizophrenia might be crucial to improve their QoL and caregiving.

摘要

目的

调查中国农村精神分裂症患者家属的生活质量(QoL),并探讨其影响因素。

方法

本研究纳入了来自中国成都市新津区的 269 名精神分裂症患者及其 269 名家属。采用世界卫生组织生活质量简表(WHOQOL-BREF)评估家属的 QoL,并采用多元回归分析其影响因素。

结果

精神分裂症患者家属的 QoL 四个维度均较差。回归分析显示,生理领域的 QoL 与患者的精神病症状和家属的照护负担显著相关(p<0.05)。心理领域的 QoL 与家属的关联耻辱感、照护负担和患者的精神病症状显著相关(p<0.05)。社会领域的 QoL 与患者的年龄和精神病症状以及家属的关联耻辱感显著相关(p<0.05)。环境领域的 QoL 与患者的年龄和精神病症状以及家属的照护负担显著相关(p<0.05)。

结论

中国农村精神分裂症患者家属的 QoL 较差。家属的 QoL 受到患者的年龄和精神病症状、家属的关联耻辱感和照护负担的显著影响。为精神分裂症患者家属提供社会支持和心理社会干预可能对改善其 QoL 和照护至关重要。

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