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与精神分裂症患者共同生活:初级家庭照料者的健康相关生活质量

Living with schizophrenia: Health-related quality of life among primary family caregivers.

作者信息

Hsiao Chiu-Yueh, Lee Chun-Te, Lu Huei-Lan, Tsai Yun-Fang

机构信息

Department of Nursing, College of Medical and Health Science, Asia University, Wufeng, Taichung, Taiwan, Republic of China.

Department of Psychiatry, Chung Shan Medical University Hospital, Taichung, Taiwan, Republic of China.

出版信息

J Clin Nurs. 2017 Dec;26(23-24):5151-5159. doi: 10.1111/jocn.14063. Epub 2017 Sep 25.

Abstract

AIMS AND OBJECTIVES

To examine influencing factors of health-related quality of life in primary family caregivers of people with schizophrenia receiving inpatient psychiatric rehabilitation services.

BACKGROUND

Families, particularly primary family caregivers, have become more important than ever in mental health care. Yet, research on health-related quality of life among primarily family caregivers is limited.

DESIGN

A correlational study design was used.

METHODS

A convenience sample of 122 primary family caregivers participated in the study. Data were analysed with descriptive statistics, Pearson's product-moment correlation, t test, one-way analysis of variance and a hierarchical multiple regression analysis.

RESULTS

Primary family caregivers who were parents, older, less educated, and had a lower monthly household income, increased affiliate stigma and decreased quality of family-centred care experienced poor health-related quality of life. Particularly, monthly household income, affiliate stigma and quality of family-centred care appeared to be the most critical determinants of health-related quality of life.

CONCLUSIONS

Efforts to enhance satisfaction of life should focus on reducing affiliate stigma as well as increasing monthly household income and strengthening the quality of family-centred care.

RELEVANCE TO CLINICAL PRACTICE

Findings may assist in the development of culturally integrated rehabilitation programmes to decrease affiliate stigma and increase family engagement as a means of promoting quality of life for primary family caregivers living with people who have schizophrenia.

摘要

目的

探讨接受住院精神康复服务的精神分裂症患者的主要家庭照顾者健康相关生活质量的影响因素。

背景

家庭,尤其是主要家庭照顾者,在精神卫生保健中变得比以往任何时候都更加重要。然而,关于主要家庭照顾者健康相关生活质量的研究有限。

设计

采用相关性研究设计。

方法

便利抽样选取122名主要家庭照顾者参与研究。数据采用描述性统计、Pearson积差相关、t检验、单因素方差分析和分层多元回归分析进行分析。

结果

身为父母、年龄较大、受教育程度较低、月家庭收入较低、附属污名增加以及以家庭为中心的护理质量下降的主要家庭照顾者,其健康相关生活质量较差。特别是,月家庭收入、附属污名和以家庭为中心的护理质量似乎是健康相关生活质量的最关键决定因素。

结论

提高生活满意度的努力应侧重于减少附属污名,增加月家庭收入,并加强以家庭为中心的护理质量。

与临床实践的相关性

研究结果可能有助于制定文化融合的康复计划,以减少附属污名,增加家庭参与度,从而提高与精神分裂症患者共同生活的主要家庭照顾者的生活质量。

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