Lindsey Hayley M, Goldman Roberta E, Riley Samantha D, Baird Sean, Burrone Laura, Grinberg Amy S, Fenton Brenda T, Sico Jason J, Damush Teresa M
VHA Headache Centers of Excellence Research and Evaluation Center, VA Connecticut Healthcare System, Orange, CT, USA.
University of Rhode Island, Kingston, RI, USA.
J Patient Exp. 2023 Jan 23;10:23743735231151547. doi: 10.1177/23743735231151547. eCollection 2023.
Patients living with headache diseases often have difficulty accessing evidence-based care. Authors conducted a qualitative research study with 20 patients receiving headache care at seven Headache Centers of Excellence within the Veterans Health Administration to examine their experiences navigating headache care. This study employed thematic qualitative analysis and conducted cross-case comparisons. Several key findings emerged. 1) Most patients saw multiple healthcare providers over numerous years before reaching a headache specialist to manage chronic headaches. 2) Receipt of high-quality and comprehensive headache specialty care was associated with high satisfaction. 3) Patients with headache diseases reported oftentimes they experienced an arduous journey across multiple healthcare systems and between several healthcare providers before receiving evidence-based headache treatment that they found acceptable. Results demonstrate that most patients were satisfied with their current specialty headache care in the Veterans Health Administration. Authors discuss implications for future studies and highlight ways to improve patient satisfaction and timely access to appropriate headache care.
患有头痛疾病的患者往往难以获得循证护理。作者对在退伍军人健康管理局下属的七个卓越头痛中心接受头痛护理的20名患者进行了一项定性研究，以调查他们在接受头痛护理过程中的经历。本研究采用了主题定性分析并进行了跨案例比较。出现了几个关键发现。1）大多数患者在找到头痛专科医生来管理慢性头痛之前的数年里看了多位医疗服务提供者。2）接受高质量和全面的头痛专科护理与高满意度相关。3）患有头痛疾病的患者报告说，在接受他们认为可接受的循证头痛治疗之前，他们常常要在多个医疗系统之间以及在几位医疗服务提供者之间经历一段艰难的历程。结果表明，大多数患者对他们目前在退伍军人健康管理局接受的专科头痛护理感到满意。作者讨论了对未来研究的启示，并强调了提高患者满意度和及时获得适当头痛护理的方法。
