Department of Neurosurgery, Copenhagen University Hospital, Copenhagen East, Copenhagen, Denmark
Department of Neurosurgery, Copenhagen University Hospital, Copenhagen East, Copenhagen, Denmark.
BMJ Open. 2023 Jan 30;13(1):e062069. doi: 10.1136/bmjopen-2022-062069.
Research identifying the needs of relatives of patients with an acquired brain injury or malignant brain tumours is emerging, and the importance of relative involvement is widely acknowledged. However, the intention of involvement does not seem to be present in current practice and healthcare professionals' routines. The complexity of involvement of relatives is comprehensive, and there is a lack of overview of interventions facilitating and enhancing involvement of relatives. This scoping review aims to identify and map the available evidence on interventions facilitating involvement of relatives of patients with acquired brain injury or malignant brain tumour throughout the disease trajectory.
The proposed scoping review will be performed following the Joanna Briggs Institute's methodology for scoping reviews. Published and unpublished literature in English, Scandinavian and German from January 2010 to August 2022 will be considered. The searches will be conducted using electronic bibliographic databases. This scoping review will consider studies describing interventions provided by multidisciplinary healthcare professionals. The key aspects of the interventions could, for example, be educational, informational, emotional, social or physical support aiming towards involvement of the relatives. This scoping review will consider all study designs, except for literature reviews of all types and designs. The data will be extracted using a data extraction tool developed to record specific data, including details of authors, year of publication, country, setting, study population, study design and key aspects of the intervention (mode, duration, intensity, provider) and type of primary and secondary outcomes applied to measure the interventions. The results will be presented in tabular form, accompanied by a descriptive summary related to the objective of the present scoping review.
This scoping review is conducted as part of a larger postdoc project, which has been approved by the Danish Data Protection Agency (ID P-2020-547). The results will be disseminated through a peer-reviewed journal and presented at local, national and international conferences on brain injuries and brain cancer.
识别颅脑损伤或恶性脑肿瘤患者亲属需求的研究正在兴起，亲属参与的重要性也得到广泛认可。然而，这种参与的意愿似乎并未体现在当前的实践和医疗保健专业人员的常规中。亲属参与的复杂性是全面的，缺乏促进和增强亲属参与的干预措施的概述。本范围综述旨在确定和绘制在整个疾病轨迹中促进颅脑损伤或恶性脑肿瘤患者亲属参与的现有干预措施的证据。
本范围综述将按照 Joanna Briggs 研究所的范围综述方法进行。将考虑 2010 年 1 月至 2022 年 8 月期间以英语、斯堪的纳维亚语和德语发表和未发表的文献。将使用电子书目数据库进行搜索。本范围综述将考虑描述多学科医疗保健专业人员提供的干预措施的研究。干预措施的关键方面可能例如是针对亲属参与的教育、信息、情感、社会或身体支持。本范围综述将考虑所有研究设计，但不包括所有类型和设计的文献综述。将使用专门开发的数据提取工具提取数据，以记录特定数据，包括作者、出版年份、国家、设置、研究人群、研究设计和干预措施的关键方面（模式、持续时间、强度、提供者）以及应用于衡量干预措施的主要和次要结果的类型。结果将以表格形式呈现，并附有与本范围综述目的相关的描述性摘要。
本范围综述是作为一个更大的博士后项目的一部分进行的，该项目已获得丹麦数据保护局的批准（ID P-2020-547）。结果将通过同行评审的期刊传播，并在当地、国家和国际脑损伤和脑癌会议上展示。
