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丹麦全国智障人群队列的死亡率模式。

Mortality patterns in a Danish nationwide cohort of persons with intellectual disabilities.

机构信息

National Institute of Public Health, University of Southern Denmark, Copenhagen, Denmark.

Department of Paediatrics and Adolescent Medicine, Copenhagen University Hospital- Rigshospitalet, Copenhagen, Denmark.

出版信息

J Intellect Disabil. 2024 Jun;28(2):359-371. doi: 10.1177/17446295231154102. Epub 2023 Feb 1.

DOI:10.1177/17446295231154102
PMID:36723454
Abstract

Mortality disparities among persons with intellectual disability are important to guide health-care practices. The objective was to evaluate mortality patterns of persons with intellectual disability in a nationwide study from 1976 to 2020. This study establishes a Danish nationwide cohort of persons with intellectual disability and age- and sex-matched reference cohort through linkage between several registers. We established a cohort of 79,114 persons with intellectual disability. Standardized mortality ratios were increased for persons with intellectual disability, most pronounced among younger persons and among females. Life expectancies were markedly lower; among persons with intellectual disability 63.6 years among females and 59.8 years among males in 2016-2020 compared to 82.4 and 78.7 years among females and males in the reference cohort. Life expectancies decreased with severity of intellectual disability. This study reports the establishment of a nationwide Danish cohort of persons with intellectual disability.

摘要

智力残疾者的死亡率差异对于指导医疗实践非常重要。本研究的目的是通过对 1976 年至 2020 年期间的全国性研究,评估智力残疾者的死亡率模式。本研究通过多个登记处的链接,建立了一个丹麦全国性的智力残疾者队列和年龄及性别匹配的参照队列。我们建立了一个有 79114 名智力残疾者的队列。标准化死亡率比值在智力残疾者中升高,在年轻人群和女性中更为明显。预期寿命明显较低;在 2016-2020 年期间,女性智力残疾者的预期寿命为 63.6 岁,男性为 59.8 岁,而参照队列中女性和男性的预期寿命分别为 82.4 岁和 78.7 岁。预期寿命随着智力残疾的严重程度而降低。本研究报告了建立一个丹麦全国性的智力残疾者队列。

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Registered Nurse-Led Interdisciplinary Care: A Single Case Study of a Young Woman With Intellectual Disability and Chronic and Complex Health Problems.注册护士主导的跨学科护理:一名患有智力残疾及慢性复杂健康问题的年轻女性的单病例研究
J Clin Nurs. 2025 Jun;34(6):2400-2408. doi: 10.1111/jocn.17685. Epub 2025 Feb 7.
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The risk of type 2-diabetes among persons with intellectual disability: a Danish population-based matched cohort study.智力残疾者患2型糖尿病的风险:一项基于丹麦人群的配对队列研究。
J Intellect Disabil Res. 2025 Jan;69(1):90-102. doi: 10.1111/jir.13190. Epub 2024 Oct 2.
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Potentially avoidable mortality among adults with intellectual disability.
成年智障患者中潜在可避免的死亡率。
Eur J Public Health. 2024 Dec 1;34(6):1225-1231. doi: 10.1093/eurpub/ckae118.