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乳腺癌女性家庭复原力问卷简表(FaRE-SF-P)葡萄牙语版的跨文化适应与心理测量学评估

Cross-cultural adaptation and psychometric evaluation of the Portuguese version of the family resilience questionnaire - short form (FaRE-SF-P) in women with breast cancer.

作者信息

Almeida Sílvia, Rodrigues da Silva Daniel, Frasquilho Diana, Costa Beatriz, Sousa Berta, Mourinho Baptista Telmo, Grácio Jaime, Lemos Raquel, Oliveira-Maia Albino J

机构信息

Champalimaud Research and Clinical Centre, Champalimaud Foundation, Lisbon, Portugal.

Graduate Programme in Clinical and Health Psychology, Faculdade de Psicologia da Universidade de Lisboa, Lisbon, Portugal.

出版信息

Front Psychol. 2023 Jan 17;13:1022399. doi: 10.3389/fpsyg.2022.1022399. eCollection 2022.

Abstract

BACKGROUND

A diagnosis of cancer, and the resulting treatment process, can be perceived as a life-threatening event, affecting not only patients but also their social network and, more specifically, their relatives. While the ability to cope and adjust to difficult health situations may be challenging, family resilience may optimize a positive adaptation to adversity and contribute to enhance the patient's quality of life. The Family Resilience Questionnaire (FaRE) is a self-report measure of family resilience that assesses this construct systematically. We aimed to validate the Portuguese version of a short form of the FaRE (FaRE-SF-P) in a sample of women with breast cancer.

METHODS

147 women recently diagnosed with early breast cancer were recruited at the Champalimaud Clinical Centre in Lisbon. Participants completed psychometric assessment including the Portuguese version of the FaRE-SF-P, composed by two subscales of the original version - the FaRE Perceived Family Coping (FaRE-PFC) and the FaRE Communication and Cohesion (FaRE-CC). Confirmatory factor analysis (CFA) was performed to assess the factor structure of the FaRE-SF-P. Construct validity was assessed using the Hospital Anxiety and Depression Scale (HADS) for divergent validity, and the Modified Medical Outcomes Study Social Support Survey (mMOS-SS) as well as the social functioning subscale from the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30) for convergent validity.

RESULTS

The CFA results confirmed a correlated two-factor structure model consistent with the Perceived Family Coping and the Communication and Cohesion subscales. Internal consistency reliability indicated good values both for Perceived Family Coping and Communication and Cohesion subscales. The results for construct validity showed acceptable convergent and divergent validity.

DISCUSSION

The FaRE-SF-P showed good psychometric properties demonstrating to be a valid and reliable family resilience measure to use in Portuguese women diagnosed with breast cancer. Since FaRE-SF-P is a short instrument it may be a useful screening tool in an oncological clinical practice routine.

摘要

背景

癌症诊断及后续治疗过程可能被视为危及生命的事件,不仅会影响患者,还会波及他们的社交网络,尤其是亲属。虽然应对和适应艰难健康状况的能力颇具挑战,但家庭复原力可能会优化对逆境的积极适应,并有助于提高患者的生活质量。家庭复原力量表(FaRE)是一种自我报告式的家庭复原力测量工具,可系统评估这一概念。我们旨在对乳腺癌女性样本中的FaRE简版(FaRE-SF-P)葡萄牙语版本进行验证。

方法

在里斯本的尚帕利莫德临床中心招募了147名近期被诊断为早期乳腺癌的女性。参与者完成了心理测量评估,包括FaRE-SF-P的葡萄牙语版本,该版本由原版的两个子量表组成——FaRE感知家庭应对(FaRE-PFC)和FaRE沟通与凝聚力(FaRE-CC)。进行验证性因素分析(CFA)以评估FaRE-SF-P的因素结构。使用医院焦虑抑郁量表(HADS)评估区分效度,使用改良的医学结局研究社会支持调查(mMOS-SS)以及欧洲癌症研究与治疗组织生活质量问卷核心30(EORTC QLQ-C30)的社会功能子量表评估聚合效度,以此来评估结构效度。

结果

CFA结果证实了一个与感知家庭应对及沟通与凝聚力子量表一致的相关双因素结构模型。内部一致性信度表明,感知家庭应对和沟通与凝聚力子量表的值均良好。结构效度结果显示出可接受的聚合效度和区分效度。

讨论

FaRE-SF-P显示出良好的心理测量特性,证明是一种用于诊断为乳腺癌的葡萄牙女性的有效且可靠的家庭复原力测量工具。由于FaRE-SF-P是一个简短的工具,它可能是肿瘤临床实践常规中有用的筛查工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a1b4/9887115/efdbcb4b5ca8/fpsyg-13-1022399-g001.jpg

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