IRCCS Institute of Neurological Sciences of Bologna, UOC Neuropsychiatry of the Pediatric Age, Bologna, Italy.
Department of Medical and Surgical Sciences (DIMEC), Neonatology Unit, St. Orsola‑Malpighi Polyclinic, University of Bologna, Via Massarenti 9, 40138, Bologna, BO, Italy.
Ital J Pediatr. 2023 Feb 9;49(1):18. doi: 10.1186/s13052-023-01419-6.
Communicating the diagnosis of Down Syndrome to a couple of parents is never easy, whether before or after birth. As doctors, we must certainly rely on our own relational skills, but it is also necessary to be confident in some general indications, which are often overlooked in the strict hospital routine. This article is intended as a summary of the main articles published on this subject in the international literature, collecting and summarising the most important indications that have emerged in years of medical practice all over the world as well as in our personal experience. The diffusion of these guidelines is essential to help the doctor in this difficult task, on which there is often little training, and above all to guarantee to the parents the least traumatic communication possible.
向父母传达唐氏综合征的诊断结果绝非易事,无论是在产前还是产后。作为医生,我们当然必须依靠自己的沟通技巧,但也必须对一些通常被严格的医院常规所忽视的一般指示有信心。本文旨在总结国际文献中关于这一主题的主要文章,收集和总结多年来在全球范围内的医疗实践以及我们个人经验中出现的最重要的指示。传播这些指导方针对于帮助医生完成这项往往培训不足的艰巨任务至关重要,最重要的是,要确保父母尽可能少受到创伤的沟通。