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自闭症谱系障碍青少年的情感和性问题:教育和医疗保健专业人员的观点——一项定性研究。

Affectivity and Sexuality in Adolescents with Autism Spectrum Disorder from the Perspective of Education and Healthcare Professionals: A Qualitative Study.

机构信息

Hospital de la Santa Creu i Sant Pau, Nursing Care Research Group, Sant Pau Biomedical Research Institute (IIB SANT PAU), 08041 Barcelona, Spain.

Health Center La Serra, Catalan Health Institute, 08208 Sabadell, Spain.

出版信息

Int J Environ Res Public Health. 2023 Jan 31;20(3):2497. doi: 10.3390/ijerph20032497.

DOI:10.3390/ijerph20032497
PMID:36767863
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9915282/
Abstract

People with autism spectrum disorder (ASD) present several different characteristics that predispose them to greater difficulties with intimate emotional and sexual relationships. This qualitative study uncovers the perspective of education and healthcare professionals on the affective and sexual needs of young people with ASD by analysing their narratives in semi-structured focus group sessions. Professionals highlight the inadequate training they receive in this aspect of health. They consider it should be commonplace for professionals working with autistic people as it would aid their collaborative efforts when treating children and adolescents with ASD. They show that, by working together with the families to establish joint objectives, these professionals can appropriately address sex and affective education, preventing risky behaviours among young people with ASD, and improving the interactions these individuals have with others. Sex and affective education is described as an indispensable tool at this stage of development and should be specially adapted for those with ASD.

摘要

自闭症谱系障碍(ASD)患者表现出多种不同的特征,使他们在亲密的情感和性关系方面面临更大的困难。本定性研究通过对教育和医疗保健专业人员在半结构化焦点小组会议上的叙述进行分析,揭示了他们对 ASD 年轻人情感和性需求的看法。专业人员强调他们在这方面的健康知识培训不足。他们认为,为与自闭症患者一起工作的专业人员提供这方面的培训是很常见的,因为这有助于他们在治疗 ASD 儿童和青少年时共同努力。他们表明,通过与家庭合作,设定共同的目标,这些专业人员可以适当地开展性和情感教育,防止 ASD 青少年的危险行为,并改善这些人与他人的互动。性和情感教育被描述为这个发展阶段不可或缺的工具,应该特别为 ASD 患者量身定制。

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本文引用的文献

1
Sexual and Reproductive Health Service Utilization and Sexuality for Teens on the Autism Spectrum.自闭症谱系青少年的性与生殖健康服务利用和性行为。
J Dev Behav Pediatr. 2020 Dec;41(9):667-679. doi: 10.1097/DBP.0000000000000838.
2
Gender identity, sexual orientation and adverse sexual experiences in autistic females.自闭症女性的性别认同、性取向和不良性经历。
Mol Autism. 2020 Jul 11;11(1):57. doi: 10.1186/s13229-020-00363-0.
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Brief Report: Asexuality and Young Women on the Autism Spectrum.简要报告:自闭症谱系女性的无性倾向。
J Autism Dev Disord. 2021 Feb;51(2):725-733. doi: 10.1007/s10803-020-04565-6.
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Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group.家庭性教育沟通:自闭症青年与对照组父母报告
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Romantic Intimacy in Autism: A Qualitative Analysis.自闭症中的浪漫亲密关系:定性分析。
J Autism Dev Disord. 2020 Nov;50(11):4133-4147. doi: 10.1007/s10803-020-04377-8.
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Temporal and Geographical Variability of Prevalence and Incidence of Autism Spectrum Disorder Diagnoses in Children in Catalonia, Spain.西班牙加泰罗尼亚地区儿童自闭症谱系障碍诊断的患病率和发病率的时间和地域差异。
Autism Res. 2019 Nov;12(11):1693-1705. doi: 10.1002/aur.2172. Epub 2019 Jul 17.
8
Sexuality in the Autism Spectrum Study (SASS): Reports from Young Adults and Parents.自闭症谱系中的性行为研究(SASS):来自青年和家长的报告。
J Autism Dev Disord. 2019 Sep;49(9):3638-3655. doi: 10.1007/s10803-019-04077-y.
9
Feasibility and preliminary efficacy of a parent-mediated sexual education curriculum for youth with autism spectrum disorders.父母介导的性教育课程对自闭症谱系障碍青年的可行性和初步疗效。
Autism. 2020 Jan;24(1):64-79. doi: 10.1177/1362361319842978. Epub 2019 May 17.
10
Sexual and Relationship Interest, Knowledge, and Experiences Among Adolescents and Young Adults with Autism Spectrum Disorder.自闭症谱系障碍青少年和年轻人的性和关系兴趣、知识和经验。
Arch Sex Behav. 2019 Nov;48(8):2605-2615. doi: 10.1007/s10508-019-1445-2. Epub 2019 Apr 22.