Centre Hospitalier Poissy Saint Germain-GHT Yvelines Nord, 78300 Poissy, France.
Nursing Sciences Research Chair, Laboratory Education and Health Promotion (LEPS UR 3412), UFR SMBH, Université Sorbonne Paris Nord, 1 Rue de Chablis, 93000 Bobigny, France.
Int J Environ Res Public Health. 2023 Feb 2;20(3):2680. doi: 10.3390/ijerph20032680.
The impact of chronic diseases on people's daily lives and the exponential number of people affected is a major public health issue. The consequences on individuals and their families is significant, particularly in terms of quality of life. In the literature, this phenomenon is well described in terms of care policy and cost. Although there is a link between a supportive environment and empowerment, there is little literature describing a supportive environment and the daily lives of people living with cardiovascular disease. The objectives of this study are to identify the strategies people use to develop an enabling environment. It will be a qualitative ethnographic study that will address both human behavior and the notion of culture in a broad sense. In the context of this study, an orientation towards critical ethnography will be considered for its particular interest in vulnerable people and in the power relations that may exist in the socio-cultural system. Data will be collected directly in people's homes through observations and interviews with 10 people with cardiovascular disease. For each person, the data collection will take place over three days and will represent approximately 210 h of observation. This protocol was registered in the Research Register on 30 June 2021 and its number is 6933. This study will explore strategies for developing an enabling environment for people living with heart disease and eventually provide recommendations for nursing practices in terms of support.
慢性病对人们日常生活的影响以及受影响人数的指数级增长是一个主要的公共卫生问题。这对个人及其家庭的影响是巨大的，特别是在生活质量方面。在文献中，这种现象在护理政策和成本方面有很好的描述。尽管支持性环境和赋权之间存在联系，但很少有文献描述支持性环境和心血管疾病患者的日常生活。本研究的目的是确定人们用来发展有利环境的策略。这将是一项定性的民族志研究，将在广义上解决人类行为和文化概念。在本研究的背景下，将考虑采用批判民族志方法，因为它特别关注弱势群体以及社会文化系统中可能存在的权力关系。通过对 10 名心血管疾病患者的观察和访谈，直接在患者家中收集数据。对于每个人，数据收集将在三天内进行，大约有 210 小时的观察时间。该方案于 2021 年 6 月 30 日在研究注册处注册，编号为 6933。本研究将探讨为心脏病患者创造有利环境的策略，并最终为护理实践提供支持方面的建议。
