Crook Christiana Joy, Yen Lisa, Ta Kathleen, Karimi Misagh, Nguyen Danny, Lee Richard T, Li Daneng
Department of Medical Oncology & Therapeutics Research, City of Hope National Medical Center, Duarte, CA 91010, USA.
Learn Advocate Connect Neuroendocrine Tumor Society, Denver, CO 80237, USA.
J Clin Med. 2023 Feb 3;12(3):1229. doi: 10.3390/jcm12031229.
Neuroendocrine tumors are a rare type of cancer found in hormone-producing cells throughout the body. Research on disease-specific patient education assessments in this population is lacking. We previously demonstrated the feasibility and validity of NET VITALS, a patient-centered self-assessment designed to improve patients' knowledge of their neuroendocrine tumor diagnosis/treatment and facilitate communication with their physician. In this report, we provide a brief overview of patient assessments that have been used for patients with neuroendocrine tumors. We summarize NET VITALS and present a proposed infrastructure for its implementation into standard clinical care in both academic and community practice settings at City of Hope. Incorporating NET VITALS into standard of care treatment for patients with neuroendocrine tumors may improve patients' overall clinical care experience.
神经内分泌肿瘤是一种罕见的癌症类型，存在于全身分泌激素的细胞中。目前缺乏针对该人群进行疾病特异性患者教育评估的研究。我们之前证明了NET VITALS的可行性和有效性，这是一种以患者为中心的自我评估工具，旨在提高患者对其神经内分泌肿瘤诊断/治疗的了解，并促进他们与医生的沟通。在本报告中，我们简要概述了已用于神经内分泌肿瘤患者的患者评估。我们总结了NET VITALS，并提出了一个将其纳入希望之城学术和社区实践环境标准临床护理的实施框架。将NET VITALS纳入神经内分泌肿瘤患者的标准护理治疗中可能会改善患者的整体临床护理体验。
