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肯尼亚西部一家三级护理医院出院癌症患者的远程临终关怀。

Telehospice for Cancer Patients Discharged from a Tertiary Care Hospital in Western Kenya.

机构信息

Academic Model Providing Access To Healthcare (K.C, S.N., I.K., N.B, H.E.), Eldoret, Kenya; Moi University School of Medicine (K.C., M.K., N.B., H.E.), Eldoret, Kenya; Indiana University School of Medicine (K.C.), Indianapolis, Indiana.

Academic Model Providing Access To Healthcare (K.C, S.N., I.K., N.B, H.E.), Eldoret, Kenya.

出版信息

J Pain Symptom Manage. 2023 May;65(5):378-387. doi: 10.1016/j.jpainsymman.2023.01.027. Epub 2023 Feb 10.

Abstract

CONTEXT

Worldwide, most patients lack access to hospice services.

OBJECTIVES

Assess the feasibility of telephone monitoring (Telehospice) in providing symptom management for patients discharged from a tertiary care hospital in Western Kenya.

METHODS

Inclusion criteria included adults with cancer no longer eligible for chemo-radiation and receiving opioid therapy. Thirty patients were enrolled in a weekly monitoring program assessing physical symptoms and patient and caregiver distress. The participants also had access to a 24-hour hotline. Symptom assessment included 18 questions with 8 from the African Palliative Outcome Scale. Participants were followed for eight weeks or until death or admission to an inpatient hospital or hospice.

RESULTS

The primary objective was participation in weekly calls, and we obtained 100% participation. A secondary objective was the use of "comfort kits" which contained 30 doses of six medications. Most patients utilized one or more of the provided medications, with high usage of bisacodyl, paracetamol, and omeprazole. While 12% of weekly calls and 24% of hotline calls led to medication changes, participants continued to express worry and there was only a modest decrease in pain scores despite having morphine available throughout the follow-up period. Family confidence in providing care and access to information remained high. At the end of the eight-weeks of observation, eight participants were alive, 10 died at home, and 12 were admitted to an in-patient facility.

CONCLUSION

Patient and family participation in Telehospice is feasible and may provide an interim solution to managing end-of-life patients who lack access to home hospice.

摘要

背景

在全球范围内,大多数患者无法获得临终关怀服务。

目的

评估电话监测(远程临终关怀)在为肯尼亚西部一家三级护理医院出院的患者提供症状管理方面的可行性。

方法

纳入标准包括不再适合化疗和放疗且正在接受阿片类药物治疗的成年癌症患者。30 名患者参加了每周监测计划,评估身体症状和患者及护理人员的痛苦。参与者还可以拨打 24 小时热线。症状评估包括 18 个问题,其中 8 个来自非洲姑息治疗结局量表。参与者随访 8 周或直至死亡、入住住院医院或临终关怀机构。

结果

主要目标是参加每周电话会议,我们获得了 100%的参与率。次要目标是使用“舒适包”,其中包含 30 剂六种药物。大多数患者使用了一种或多种提供的药物,其中使用最多的是比沙可啶、对乙酰氨基酚和奥美拉唑。虽然 12%的电话会议和 24%的热线电话导致药物变化,但参与者继续表示担忧,尽管在整个随访期间都提供了吗啡,但疼痛评分仅略有下降。家庭提供护理和获取信息的信心仍然很高。在 8 周观察结束时,8 名参与者仍活着,10 名在家中死亡,12 名入住住院病房。

结论

患者和家属参与远程临终关怀是可行的,可能为那些无法获得家庭临终关怀的临终患者提供一种临时解决方案。

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