临终关怀与安宁疗护中的靶向数字健康干预：一项范围综述

Targeted Digital Health Intervention in End-of-Life and Hospice Care: A Scoping Review.

作者信息

Jeon Misun, Jeon Heejung, Kim Sanghee

机构信息

College of Nursing and Brain Korea 21 FOUR Project, Yonsei University, Seoul, South Korea.

College of Nursing and Mo-Im Kim Nursing Research Institute, Yonsei University, Seoul, South Korea.

出版信息

J Adv Nurs. 2025 Sep;81(9):5678-5690. doi: 10.1111/jan.16734. Epub 2025 Jan 3.

DOI:10.1111/jan.16734

PMID:39749858

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12371825/

Abstract

AIM

Digital health interventions, including health analytics, telehealth, mHealth and digitised healthcare systems, are rapidly advancing and demonstrate effectiveness in palliative care. Although end-of-life (EOL) and hospice care are within palliative care, they differ in outcomes, target populations and delivery systems. This review examines research trends to guide digital health strategies for EOL and hospice care.

DESIGN

Scoping review.

DATA SOURCES

Systematic searches in CINAHL, MEDLINE, SCOPUS, EMBASE, Cochrane and Web of Science identified studies from 2019 to 2023 using keywords 'end of life', 'hospice' and 'digital health'.

METHODS

Following the Joanna Briggs Institute framework, two reviewers independently screened studies, extracted data and categorised health challenges and digital health types per World Health Organization and Deloitte classifications.

RESULTS

Among 4342 studies, 38 met the inclusion criteria. Most were retrospective (36.8%) without control groups (68.3%). Key targets included healthcare systems (44.2%) and patients (25.6%), focusing on health analytics (44.7%) and mHealth (23.7%) for EOL transitions and symptom management. Main challenges included utilisation (34.9%), efficiency (32.6%) and quality (30.2%).

CONCLUSION

Digital health interventions hold potential for enhancing EOL and hospice care but face challenges such as study design limitations, appropriate modality selection, rapport-building and risks of exacerbating health inequalities. Future interventions should emphasise human-centred digital capabilities for healthcare providers and user-centred designs.

IMPACT

This review highlights opportunities for digital health to improve quality of life for EOL and hospice patients and caregivers. The insights provide guidance for applying digital health interventions in different settings and highlight the importance of equipping healthcare providers with human-centred digital competencies.

REPORTING METHOD

The reporting was guided by the PRISMA extension for scoping reviews (PRISMA-ScR).

PATIENT OR PUBLIC CONTRIBUTION

No patient or public contribution.

摘要

目的

数字健康干预措施，包括健康分析、远程医疗、移动健康和数字化医疗系统，正在迅速发展，并在姑息治疗中显示出有效性。尽管临终（EOL）和临终关怀护理属于姑息治疗范畴，但它们在结果、目标人群和服务提供系统方面存在差异。本综述旨在研究相关趋势，以指导临终和临终关怀护理的数字健康策略。

设计

范围综述。

数据来源

通过对CINAHL、MEDLINE、SCOPUS、EMBASE、Cochrane和Web of Science进行系统检索，使用关键词“临终”、“临终关怀”和“数字健康”，确定了2019年至2023年的研究。

方法

按照乔安娜·布里格斯研究所的框架，两名评审员独立筛选研究、提取数据，并根据世界卫生组织和德勤的分类对健康挑战和数字健康类型进行分类。

结果

在4342项研究中，38项符合纳入标准。大多数研究为回顾性研究（36.8%），且无对照组（68.3%）。主要目标包括医疗系统（44.2%）和患者（25.6%），重点关注用于临终过渡和症状管理的健康分析（44.7%）和移动健康（23.7%）。主要挑战包括利用率（34.9%）、效率（32.6%）和质量（30.2%）。