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儿童癌症生存者未来生育的共同决策:乌干达父母的观点。

Shared Decision-Making About Future Fertility in Childhood Cancer Survivorship: Perspectives of Parents in Uganda.

机构信息

Department of Obstetrics and Gynaecology, Uganda Martyrs University School of Medicine, Kampala, Uganda.

Department of Reproductive Endocrinology and Infertility, Mulago Specialized Women's and Neonatal Hospital, Kampala, Uganda.

出版信息

J Adolesc Young Adult Oncol. 2023 Oct;12(5):718-726. doi: 10.1089/jayao.2022.0127. Epub 2023 Feb 14.

Abstract

Despite a plethora of literature on barriers to addressing future fertility in childhood cancer survivors, the data are not representative of limited middle-income settings. Unique and context-specific factors may influence addressing future fertility care among childhood cancer survivors in Uganda. This study aimed to explore the experiences, attitudes, and perceptions of parents on their interactions with health providers about future fertility, as part of their child's cancer survivorship. Using grounded theory, semistructured interviews were conducted with parents of children diagnosed with cancer, <18 years of age, and not in the induction or consolidation phases of treatment. Transcripts were thematically analyzed. A total of 20 participants were interviewed, with the majority identifying as female ( = 18). The global theme that arose was the importance of shared decision-making, and the key themes encompassing this were as follows: (1) importance of accurate information, (2) respect of autonomy, and (3) engagement and psychosocial support. In Uganda, parents of children with cancer value a multifaceted approach to satisfactory decision-making within the context of oncofertility.

摘要

尽管有大量关于儿童癌症幸存者解决未来生育能力障碍的文献,但这些数据并不代表有限的中等收入环境。在乌干达,影响儿童癌症幸存者解决未来生育能力护理的因素可能是独特的和特定于背景的。本研究旨在探讨父母在与医疗服务提供者就未来生育问题进行互动方面的经验、态度和看法,这是其孩子癌症生存的一部分。使用扎根理论,对年龄在 18 岁以下且不在诱导或巩固治疗阶段的癌症患儿的父母进行了半结构化访谈。对转录本进行了主题分析。共有 20 名参与者接受了采访,其中大多数是女性(=18)。出现的总体主题是共同决策的重要性,包含这一主题的主要内容如下:(1)准确信息的重要性,(2)尊重自主权,以及(3)参与和心理社会支持。在乌干达,癌症患儿的父母重视在肿瘤生育力背景下以多方面的方法来做出令人满意的决策。

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本文引用的文献

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