Department of Paediatrics and Child Health, Medical College, Aga Khan University, Nairobi, Kenya; Department of Public Health and Primary Care, Brain and Mind Institute, Aga Khan University, Ghent University, Belgium.
Pediatric Neurology Unit, Postgraduate Institute of Medical Education & Research, Chandigarh 160012, India.
Seizure. 2023 Mar;106:85-91. doi: 10.1016/j.seizure.2023.02.005. Epub 2023 Feb 10.
Worldwide, People with Epilepsy (PWE) are confronted with several barriers to face-to-face consultations. These obstacles hamper appropriate clinical follow-up and also increase the treatment gap for Epilepsy. Telemedicine holds the potential to enhance management as follow-up visits for PWE are focused on more on clinical history and counselling rather than physical examination. Besides consultation, telemedicine can also be used for remote EEG diagnostics and tele-neuropsychology assessments. In this article, the Telemedicine Task Force of the International League Against Epilepsy (ILAE) outlines recommendations regarding optimal practice in utilizing in the management of individuals with epilepsy. We formulated recommendations for minimum technical requirements, preparing for the first tele-consultation and the specificities for follow-up consultations. Special considerations are necessary for specific populations, including paediatric patients, patients who are not conversant with tele-medicine and those with intellectual disability. Telemedicine for individuals with epilepsy should be vigorously promoted with the aim of improving the quality of care and ultimately reduce the wide clinician access related treatment gap across several regions of the globe.
全球范围内，癫痫患者（PWE）在面对面咨询时面临着多种障碍。这些障碍妨碍了适当的临床随访，也增加了癫痫的治疗差距。远程医疗有可能改善管理，因为 PWE 的随访更侧重于临床病史和咨询，而不是体检。除了咨询，远程医疗还可用于远程脑电图诊断和远程神经心理学评估。本文中，国际抗癫痫联盟（ILAE）远程医疗工作组就利用远程医疗管理癫痫患者的最佳实践提出了建议。我们针对最低技术要求、首次远程咨询的准备以及随访咨询的特点制定了建议。对于包括儿科患者、不熟悉远程医疗的患者和智力残疾患者在内的特定人群，需要特殊考虑。应该大力推广针对癫痫患者的远程医疗，以提高护理质量，最终减少全球多个地区广泛存在的与临床医生获取相关的治疗差距。
